A Journey through my Paranoid Schizophrenia, Mental Health, Faith and Life.

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A Hectic Day But One So Full Of Blessings!

Ever have one of those days when you have planned just doesn’t happen and yet what does happen is so much better?

Well today was one of those days and I am soooooooo happy!

I had a lay in this morning as a result of my having a particularly rough night with next to no sleep whatsoever as a result of my going through a very rapid cycling phase at the moment with mood swings coming fast and furious.

When I did get up and after I had partaken of my compulsory first cup of coffee – which is to me what antifreeze is to a car engine – I checked my emails and received notifications of the two additional nominations for the Versatile Blogger Award.  What an excellent start to the day.

After writing a post thanking those kind bloggers who nominated me I decided that I would do some filing and computer work that I need to get caught up on.  Not because of any dead-lines but simply because it has been on my mind of late.  But my son and his partner turned up and took me into town for dinner and to buy some equipment for an extensive change around in my Internet system within my home and that my son and I have been discussing of late.

Because I am disabled and as a result of my health I live in a bungalow here in Ireland and one that is fairly long as a result of it having enough rooms for myself, my son, and the live in carer that I am meant to have but absolutely refuse to have.

This of course makes it harder to keep the place clean and tidy and I am a bit of a clean freak when it comes to my home but the main problem is that the signal from the wireless router that was installed in my study doesn’t reach all the way to the end of my bungalow.  This therefore meant that it has been very difficult for me to sit in the comfort of my lounge and use my laptop or my android pad.

So Matthew and I had discussed moving the router into the hallway but there were a couple of major problems with this.  Firstly there were no power points out there and secondly there were no telephone points out there.

But as I say, today Matthew  and Trish took me into town to get some equipment and he has now not only installed a power-point and a telephone socket and moved my wireless router into the hallway outside of my study but also installed a power-point and a second wireless router at the other end of my bungalow.  So I now have wireless access in ever room of my home and also in my garden and I am delighted.

Wanting to do a good job and keen to make sure that I remain safe, not only has he done this for me but he has also started to re-route all of the network cabling, telephone cabling and television cabling up through the attic space and down into the rooms.  This way not only does it make my hallways look a lot tidier but it also means that there is less chance of me falling over any loose cables should they come free from the walls.  It isn’t quite finished but since it is so late we will complete this mammoth re-wiring task sometime tomorrow.

Whilst Matthew was doing this I took the opportunity to install a couple of additional hands-free cordless telephones, one in the kitchen and one in my study and this means that I am now much safer as, since I have a habit of falling, no matter what room I am in (other than the bathrooms) there will always be a telephone handy should I need to ring him or the ambulance service for help.

I also took the opportunity to do something that I have been wanting to do for a very long time now.  To clean my wireless keyboard by stripping it down, removing each and every key, and thoroughly cleaning them individually before then putting them all back.  Something that has its risks not only because of the various springs and connections involved and the need to replace them all the keys correctly but also because in the past when I have been rapid cycling like this I have started a project of this type whilst manic only to then have m,y mood crash and simply not be bothered to finish it all.

So as you can see today (although technically it was yesterday now since it passed midnight a few minutes back) really was an excellent day.  But I am so very drained now and really need to try to rest so I am going to try to go rest.  Tomorrow is (as they say) another day and there is a lot still to be done.

 

The Versatile Blogger Award – So very grateful.

A little while back now I was so very blessed to be nominated for, and thus to receive, The Versatile Blogger Award.

I think for me the greatest blessing of this award is the fact that it is an award given to bloggers by other bloggers. Participating bloggers nominate other bloggers whom they feel are deserving of the award and once that blogger is nominated they receive the award and then also get to nominate other bloggers.

So it really does mean a great deal to me and I was, and am, so very grateful to Lulu from ‘As The Pendulum Swings‘ for nominating me.  That was actually only as far back as the 10th of this month.

So imagine how much more I delighted, blessed, and grateful I am to learn today that I have been given this award a further two times.

CarlaRenee45  from ‘Seasons Change, Change and Change‘  and Piperou7 from ‘My Life In Pills‘, both of which being really great bloggers and having very interesting blogs of their own have  just nominated me for this award

So I want to give a really big thank you to CarlaRenee45 and to Piperou7 (and of course to Lulu for originally nominating me) for their kindness  and their confidence in this blog/site.

Having received this award there are several things that you have to do and having already done these on my original nomination I won’t bore you all by repeating them here.  But those who missed them and who are interested can find my original award post here – Yay an Award! Now that is a blessing and somewhat bemusing.

So there you have it.  Two more very gratefully received blessings to start my day off with.

Again, I am so very grateful!

Kind Regards,

Kevin.

New Rating System – Trying an Experiment.

Whilst playing with the dashboard of this blog/site I noticed that it had a ‘Ratings’ Section.

So I thought I would experiment a little and enable the Ratings System on this site and see if readers liked it.

Basically readers can now rate each post and indeed comments by simply clicking on the rating section appearing at the end of them.

As a writer/blogger I appreciate each and every comment that is made and hope that these will continue but it is also important to me that my work remain relevant and enjoyable and the rating system (if used) is a way of my seeing whether folk are enjoying my stuff.

So underneath each posting you should see the same picture that appears in the red box below.  All you have to do it to click on the number of stars you wish to award as a rating.

Posts Rating System Example

In terms of comments, the rating system is above each of the comments and is shown in the picture in the red box below.  All you have to do is click on the hand with thumb up if you like the comment and the hand with the thumb down f you really dislike the comment. (Which I hope no one will)

Comments Rating System Example

I have to be honest I am less sure about the rating of comments but did want to afford folk the chance to easily express their appreciation or agreement with things other readers have said.

But of course it really is up to you the reader whether or not you think the rating system is a good idea and if you would use such a system?  I really would like to know your opinions on this.

So how about dropping me a comment  and letting me know your views on this?

Many thanks and Kind Regards,

Kevin.

Reality Television – Is It Society’s Attention Deficit Disorder?

Ok so it is gone 5 in the morning and guess who can’t sleep?  Yep you guessed it!

Once again I find that my sleep is unsettled and broken.  For the record I did actually go to bed early and indeed did manage to sleep (albeit restlessly) for a couple of hours and then I woke up.  Just to add to the fun I then went to remove my breathing mask ( I have to use a CPAP machine when I sleep) and the mask broke in my hands.  About a foot and half of sticky tape later and it is just about useable but I am somewhat frustrated about it to say the least.  So I need to vent a little…

So I am awake and laying there and I zap the television to life with the remote control and start deftly navigating my way through the channels in search of something bearable to watch.

Saint’s preserve us there is a heck of a lot of dross on television early in the morning!!  If I didn’t have mental health issues before I started watching twilight television I sure as heck would have by the end of it I reckon. It really is just an endless stream of tele-commercials and ‘Reality Television’

Now whilst I am certain that I gave the tele-commercial’s sugary sweet announcer’s earnest suggestion that my life, romance and appeal would be greatly improved by my purchasing the latest no wire one size fits all push up bra, I decided not to reach for credit card and phone!

hm, does this colour look good on me?

My man boobs are anything but perky and trust me one size fits all in my case just doesn’t work.  It would be like trying to force two sacks of jelly into a couple of ice-cream cones.  Just not gonna happen.

Which sad realization led me to the world of Television Reality Shows!  Heavens above they are weird and is it just me or do most Television Reality Shows lack (um what’s the word I am looking for here?  On yes that’s it) REALITY!

Now don’t get me wrong here, whilst I would be the first to admit that there is such a thing as good reality television I have to say that most of it is, in my humble opinion,  just car-crash television.  But what is worse is that it is often just a vehicle through which unscrupulous money-orientated television production companies prey on the less fortunate in life in order to make mega bucks and in the process use the tragedies and/or sometimes seemingly desperate need for attention or recognition of folk who need very real help to do so.

And I think that is the thing that concerns me the most in all this.

Those folk who desperately do need help and who really should not be allowed or encouraged to let themselves be paraded like performing seals just for the entertainment of the masses.  Let’s be honest here.  There are folk who crave attention in order to ‘achieve’ or to feel that they have ‘made it’ or that they have some worth in life.

The fact is that they already have worth and (at the risk of sounding like a grumpy old git) isn’t it a sad indictment of society and the values we hold if we are producing a culture where this kind of attention seeking is to be valued?

As someone who loves music and singing I consider myself to have a fairly good voice and at least a limited amount of talent when it comes to singing.  My love of music and singing has meant that of the plethora of mindless dross of reality TV that is out there I have and do sometimes watch television talent shows such as Pop Idol, X Factor, The Voice of Ireland (possibly one of the better ones), and America’s (or Britain’s) Got Talent.

I admit it.  Some of them I actually enjoy watching.  But what I don’t enjoy (and I have to say I haven’t seen this happening on The Voice of Ireland) is when they show folk who clearly can’t sing or clearly don’t have the talent they thought they had and do so in a way that is demeaning or ridiculing or embarrassing for the person concerned just because it allegedly ‘makes for good TV’ .

We have to be careful here don’t we?

As someone who suffers from poor mental health I know that one of the symptoms of my mental health is altered perceptions.  Sometimes I perceive things incorrectly.  I know it, admit it and I trust on those who care for me and who love me to let me know when I am going through some wrong thinking.  [Hey I just sat and photo-shopped a picture of me to make it look like I am wearing a bra and then I published it on the internet - how's that for  wrong thinking? lol]

But seriously, where is the moral compass when it comes to what will or won’t be shown on the so-called ‘reality television shows’?  Well I guess the plain simple truth is that if the producers and commissioners of such programs won’t use one then we have to be that moral compass and use the power of the ‘ratings’ and the ‘remote control’.

Attention Deficit Disorder (ADD) and Attention Deficit Hyperactivity Disorder (ADHD) are very serious life-impacting conditions and I do not in any way mean to disrespect them or make fun of them through this article.

If anyone is offended by my using these terms in connection with the ever popular so-called ‘reality TV’ that is pumped through our televisions and the seemingly ever-increasing desire for ‘fame at any cost’, then I apologize and I hope that regular readers will know me by now and know that I mean no disrespect here.

But I think the point I am making through using this term is still valid and relevant.  At a time when censoring and such things as SOPA and PIPA and the even more outrageous and deeply dangerous and concerning ACTA are very relevant I am not talking of censoring for the sake of censoring here.  But what I am talking about is a very real need for good old common sense, decency, and mutual respect.

Mind The Gap! – Of Undergrounds, Couches and Functionality

Gaps are important, aren’t they?

They are all over the place, if you really think about it.  But whilst we are aware of them on some level or another perhaps we all too often ignore them.

Of course sometimes they come with warnings…

Although I now live in Ireland, and have done so for several years, I grew in England and spent many a holiday up in London holidaying with family.  So dashing to and fro on the London Underground was a very common thing for me.

Although I have very few specific childhood memories and indeed could not for the life of me remember even one of the many journeys I must have taken on the tube (the London Underground).  I do still recall the yellow line and writing painted on the edge of the platforms of each Tube Station that read ‘MIND THE GAP’.  Actually I also remember the loud public address system announcement that very clearly warned everyone to ‘MIND THE GAP’ each and every time a tube pulled into a station and the doors opened.

Of course some gaps can bring both bad and good fortune…

I think we have probably all lost things down in the gaps of the cushions of our couches/sofas and by the same token I imagine we have probably all found things down there that we never knew were there.

I can remember a time when the gaps between the cushions of the couch and indeed those around the sides and back of the couch were my son’s go to place for lost coins whenever he asked me for money and I had none on me to give him.  :)   Actually, having just typed that, I am reminded that there have been times when they were my go to place if I had run out of smokes and didn’t have enough cash to buy some.

But some gaps are less obvious and instead of coming with a warning actually are a warning….

Gaps in functionality are I think one example of this.

As someone who suffers from very poor physical and mental health I consider myself very fortunate (or in Christian terms very blessed) to be able to achieve the things that I am able to achieve and to function at the level that I am generally able to function at.  Naturally I have good and bad days, good weeks and bad weeks, sometimes even longer periods, but I am grateful for how I am able to function most of the time.

But even when I am able to function at a high level is everything always ok?

Well, the honest answer has to be no.  Even at my best I may still not be ‘right’ or ‘OK’ and there may still be things in my functionality that are going awry or that might be missed from time to time or even completely overlooked until they become a major issue.

There have been and are, without doubt, times  when on the face of it things seem to be going OK and I seem to be coping well but actually if you look more closely there are gaps in my functionality that might not at first be noticed.  These gaps in functionality are, I think, extremely important and can very often be indicators that something is not right.  And sometimes, I believe, there are specific gaps that repeatedly appear and thus are good indicators, if we were to but notice them.

For example, in my own situation I usually live alone and I like to keep a clean and tidy home. But I suffer from both poor mental health and poor physical health.  Interestingly, because of the conditions and illnesses that I have, both my physical and mental health, whilst never being good, do often cycle into severe episodes.

In terms of my physical health, when it decreases I am not able to maintain the level of cleanliness and tidiness that I would like and normally maintain for my home.

In fact, I remember being told off by one of my friends, when she called to visit me one day.  She told me off for having told her that I was OK when I wasn’t.  “Whose saying I am not OK?”  I asked, still trying to maintain the impression that everything was alright.

“Your house is.”  She answered, with a gentle smile. “Don’t get me wrong, it is still clean and tidy, but not anywhere near as clean and tidy as you usually keep it and that always means you are struggling with your health.”

She was right and no I shouldn’t have said I was alright when I wasn’t.  But of course we are all human – yes even those of us with mental health issues are still human – and yes we all vary in our levels of functionality and very few of us actually like to admit it and thus be a burden to others.

But isn’t it also true that we sometimes choose to ignore those ‘gaps’ in our functionality because we want so badly for everything to be or to seem to be alright?

Just as my home, or it’s level of tidiness, is a gap that can often be an indicator in respect of my level of physical functionality there are gaps that are good indicators as my level of mental functionality.

The inability to; write fluidly, think cohesively, remember things, focus properly, manage my finances correctly, are all gaps in my functionality that appear when my mental health worsens.

These gaps in our normal level of functionality are, I believe extremely, important.  So too is our noticing, acknowledging and responding to them and/or our caretakers or carers noticing, acknowledging and responding to them.

In this article I have mentioned one or two examples of the gaps which appear in my own functionality when my physical or mental health worsen and which are good indicators of their worsening.  As I said above, these do not come with warnings as much as they are indeed warnings themselves.

One of the things that I need to do is, having identified these warning gaps in my functionality  is to let those closest to me know what they are and to then be honest with them when they appear and to ask them to be honest with me if and when they see these gaps appearing.

Perhaps you can think of specific gaps that always or usually seem to appear in your functionality when you are struggling or beginning to struggle and which can be used as effective early warning signs for you and those who care for you?

If so, I hope that like me you will try to make those closest to you aware of them so that they too can help you.

Bipolar Disorder and Sleep Patterns Poll – Update

Hi all,

Firstly I want to say a really big THANK YOU to those who have reblogged the polls and encouraged their readers to participate.

I believe that whilst fairly basic, this will be an interesting poll and the more we can get to take it the more representative and thus useful it will obviously be.

For those who have missed the poll it is split into three sections and each participant is asked to give one (the most accurate for them) answer to each section. You can find the poll here Bipolar Disorder and Sleep Patterns – New Poll

Please be assured participants names will remain confidential and only the answers will be shared. I am able to confirm that at present 13 people have participated in the poll.

Again many thanks to all who have participated.
Kind Regards
Kevin

She

Very often, when I can’t sleep, my mind starts to wander. And that, more often than not, is not a good thing because it grants liberty to the voices and then to the bad thoughts.

So I divert it, trick it, preoccupy it.

Last night, whilst not able to sleep, I sat in front of the fire looking into the flames and I wondered how I would react if instead of it being me who suffered with mental health issues such as Schizophrenia and Bipolar disorder it was a loved one, a lover if you will.

Just how would I feel if I had a lover and if she had Bipolar Disorder instead of me…

She…

She fell,
Ashen and spent.
So fragile and delicate,
upon the hard granite hearth
that is her illness.

Static and empty.
The smallest of movements
created by the gentle wisps of breath
that encapsulated her.

And in her stillness
such beauty and yet such despair.
such fragility and yet such grace.

-oOo-

Only moments before I had been watching,
watching for what seemed like an eternity.
As she danced, spun, toppled, soared, dived, leapt.
Dancing involuntarily to the tune played
by the heat of the fire that is the mania

A fire that I could no more extinguish for her,
than experience for myself.

But now that fire has let her go.
Ashen and spent,
fragile and delicate
she lays before me
and before another world
her other world.

A world as dark, as desperate, and as hopeless
as the fire was radiant and fulfilling and alive.
Another world I truly cannot enter for her
or even hope that I could keep from her.

-oOo-

She.

She is beauty

She is wonderment

She is fire and she is ice

She is flame and she is ash

she is need and she is fulfilment

She.

BPD – The Snakes (Or Chutes) & Ladders of Mental Health

So apparently, ‘Snakes and Ladders’ as it is known in the UK and here in Ireland is more commonly known as ‘Chutes and Ladders’ across the pond in the USA.  Who knew?  Certainly not I.  But if there is one board game that so readily makes me think of my life with Bipolar Disorder it is that one.

In the game you work your way to the end of the board and along the way encounter ladders that soar you higher and snakes or chutes then send you colliding down. Sound familiar?

Of course in the game whenever you land upon a ladder you seldom become so manic that; everyone thinks you are overdosing on red bull, think you are a the dalai lama or a ‘special one’, go out on a spending spree and buy fifteen sat navs/gps systems when you don’t even own a car, get distracted by such things as a fly breaking wind fifteen miles away, or talk so fast that not even a group of cattle traders could understand you.

And likewise when you hit on a snake or a chute you seldom get so depressed that; you just want to crawl under the board and hide, or even climb into the snake or chute and sleep forever, or become convinced that the entire board has been specifically designed by some deity, higher power or the universe just to get you, or find the next or highest ladder just so you can hang yourself from it.

Of course I am exaggerating and using a little humor in some of the above examples but whilst some of the above examples may be exaggerated or slightly humorous, trust me the stark contrasts between the extremes are neither exaggerated nor humorous and neither is the severity of the impact that  such a condition can have on the sufferer and his or her family.

And here’s another piece of trivial information for you.  Snakes and Ladders or Chutes and Ladders originated in India where it was known as moksha pAtam or vaikunthapaali or paramapada sopaanam the ladder to salvation and for many of us who suffer from the condition the end and not having to experience it ever again truly is seen, in times of the depths of the despair and depression, as being a kind of salvation.

As a mental health blogger I have now been blogging about my mental health for over three years now.  I know because I went back and checked and indeed the first posting on this blog was way back in January of 2009 and was appropriately called “Voices of Glass“.

Of course what I didn’t know way back then was that there is a whole community of other mental health bloggers and I am by no means suggesting that I thought I was the only one, it just didn’t occur to me to even consider if there were others.  It was, and I hope you understand this, more about me getting out what was trapped inside me and letting others know that they were not alone, than it was about me needing to know I was not alone.

And that is I think another interesting parallel that can be drawn between the game and the condition.  It is not a one player game and whilst you can indeed play it alone the fact is that there are lots of others soaring up those ladders and crashing down those snakes or chutes and I have to tell you, having some idea of what they are experiencing in both the soaring and the crashing my heart goes out to each and every one of them.

You see I am not just a mental health blogger, I am a reader too and I visit a number of other blogs, many of which having similar themes to this one, and I do so knowing that I cannot help but invest of myself in what I am reading and in the sufferings of those who share it with me.  I don’t know how to read other mental-health sufferer’s work dispassionately or clinically.  I don’t know how to just read and move on.

Because whilst I may have used a simple well-known board game as a picture or example of  this mental condition/illness and whilst I may have drawn a number of parallels from it along the way there are a couple of truths here that totally separate the game from the reality…

Firstly, whilst snakes and ladders or chutes and ladders is a game that friends and family can all get involved in and whilst friends and family can indeed get involved in the life of a Bipolar Disorder sufferer, the fact is that they can never truly know what those ladders or those snakes or chutes and the desperate opposing realities of difference between them are truly like unless they too also suffer from the illness.

Secondly, and more importantly, Bipolar Disorder is not a game. It is life and it is death and it is the expansive wilderness of isolation that lies between the two.  Until those realities are understood and accepted by those who look on, even those who look on in caring and love, the isolation that I speak of and that we sufferers often feel will always be there.

Where am I in the midst of this real-life struggle of snakes or chutes and ladders?  Am I level, or soaring up a ladder or crashing down a snake or a chute?  What does it matter? Is it more important were I am or where you are in all of this?

If indeed I am soaring up a ladder ready to soar out of control then standing at the bottom shouting, “Come down!  It isn’t safe up there!  You’ll do yourself harm!” isn’t going to help one little bit. I need you to somehow try to climb that ladder and lead me down.  And yes I know the seeming impossibility of what I ask.

If I have crashed headlong down that snake or chute and am swimming naked and raw, lost and alone through a quagmire of desperation, then standing at the top looking in and shouting, “Come back!  Climb back up! It isn’t safe down there!  You’ll get hurt or end up hurting yourself!” is going to do nothing to help me.  I need you to somehow climb down and get me.  To wrap your arms around me  and to hold me safe and warm and to protect me with your love and somehow wash me clean with your tears.

Where am I in the midst of this real-life struggle of snakes or chutes and ladders?  I am here – now tell me this.  Where are you?

I and Mine’s Theory of Relativity.

‘I and Mine’s Theory of Relativity’ reads thus….

“In any situation where one subject is assessed relative to another or to multiple others, the potential for absolute validity of assessment is directly proportional to the number of absolutes and/or variables (especially the variables) used within the making of said assessment. 

However, wherever and whenever ‘I’ or ‘mine’ factors are introduced to said assessment the shape, form and effects of those absolutes and variables are subject to potential change as a direct result of the positive and negative effects of those factors and indeed how they are introduced.  Thus, unless said influences are counteracted by the introduction of an appropriate and adequate impartiality factor, the resultant validity of said assessment is questionable.”

Ok So I’ll come clean. “I and Mine’s Theory of Relativity” doesn’t really exist, or at least it didn’t until now.   In fact I formulated it after giving the whole subject of “comparing ourselves to others” a fair bit of thought lately and I named it as a result of its content and the phonetic play on Einstein’s Theory of Relativity.  But does that make it any the less relevant or true?

I think the major problem with comparing ourselves and our circumstances/difficulties to others is that it is seldom a good idea as there are without doubt a number of ‘I’ and ‘Mine’ factors involved in this.

As I mentioned in the theory, the number of absolutes and especially variables in any given assessment will have a direct and often negative effect on the validity of the assessment.  Likewise, when ‘I’ and ‘Mine’ factors are introduced, how they are introduced and who introduces them can also cause that ‘number of variables’ to increase greatly.

So let’s take a look at that for a moment…

Firstly, we can seldom tell exactly what is going on in someone else’s life or how they are truly handling things and so any assessment based on that consideration will to some extent be guess-work which of course is a very definitely a variable.

Additionally we seldom have all the facts concerning other factors in that person’s life and this therefore increases the variable.  So right from the get go our assessment or comparison is on very shaky ground and thus the validity of any results is therefore extremely dubious.

Secondly our perspective of ourselves in relation to others is often flawed.  Especially when we experience mental illness as all too often we also (as a result of our difficulties with mental health) consciously or subconsciously have a poor or lowered estimation or image of ourselves.

Because of this, unless we are very careful, any positives that we assign to the other person can all too easily serve to heighten or increase the negatives that we apply to ourselves.

Thirdly, all too often the idea of a comparison or assessment of our self or our difficulties/circumstances relative to another person is all too often introduced either by that person or a third-party.  And in most cases there is already a history in place which will shape (either positively or negatively) the comparison or assessment and it is extremely difficult to obtain a clinical, detached, or accurate comparison or assessment under these circumstances unless (as the theory suggests) these influences are counteracted by the introduction of an appropriate and adequately impartiality person.

Two very important factors to remember here are 1) that we are all unique and 2) that when it comes to pain, suffering and difficulties these are all extremely personal and individual just as are our abilities to cope with them or to conquer them are extremely personal and individual.

Because of our uniqueness and the personal and individual nature of our difficulties no comparison with, or assessment relative to another, is ever going to produce exact or totally valid results.

It is for these reasons and because of “‘I’ and ‘Mine’s’ Theory of Relativity” that I think any comparison or assessment of ourselves relevant to another is potentially terribly flawed, unhelpful and often unhealthy UNLESS we can be absolutely certain of total impartiality in that assessment.  And even then I would question its wisdom, usefulness or healthiness.

In Shakespeare’s Hamlet ( I think it was Act one Scene three but I am not sure of that) Polonius tells his son Laertes “To thine own self be true”  Of course Polonius meant it in a different context to how I am going to use it here but there is great wisdom in those words.

To Thine OWN self be true”.

Not to anyone else’s self but to ‘thine own self.’ I am not you and you are not me.  Likewise I am neither any one of my brothers or my sister, nor am I my mother nor my father and what is more I cannot possibly be them.

That is not selfishness that is reality.  I am me and it is to me that I must stay true because it is me I ultimately have to live with and only I have my specific mental, physical, emotional and spiritual – nature, perspectives, history, challenges, abilities, hopes, and difficulties.

But let me offer one final observation before closing what is already a very long posting.  And I really do apologize for its length but I did promise I would write a posting on relativity and comparing ourselves with others and I really do think it is a very important subject.

I am convinced that truth without love is like a tear without release.  It enables little, heals nothing, and expresses even less.  So to borrow from Polonius and Shakespeare and indeed to add to what they said…

“To thine own self be true and do so knowing this can only fully be achieved in love.”

God bless.

Out of Whack Again!

It is past midnight and  I am sat at my desk feeling like death warmed up and trying to struggle through.

In truth I really don’t feel like talking to anyone and so have not even turned on my Skype or Facebook chat or Google Talk or anything today.  This is not so much a desire to isolate as it is a need not to connect.  I am fairly sure that others who are reading this will be able to identify with both that “state” and that “statement”.

In fact I got up fairly early this morning despite feeling the way I did and again “tried to struggle through” and actually I did manage to do some light housework – dishes, laundry etc but was then forced back to bed as a result of being devoid of  any energy.

Even when I got up this evening it was only to make it as far as the armchair and to stay there until now (other than frequent visits to the bathroom).  As I am typing this my arms and muscles are aching and my eyes and head are so very heavy.  These are all symptomatic of my Chronic Fatigue Syndrome and of depression both of which I am experiencing at the moment.  Although the level of muscle aches would indicate CFS more than depression.

The frequent visits to the bathroom are as a result (I now know) of my blood glucose levels being ‘totally out of whack’ as my American friends would say and it is one of the things that seems to happen when I begin to crash like this. – Everything seems to impact each other in terms of my mental and physical health.

This can of course be overwhelming and I am at least fortunate in as much as my son and his partner are currently stopping with me and therefore able to look after me.  I am going to go lay down and to try to rest some in order to be able to function at a level where I can at least achieve some things tomorrow.

Sadly this is not new to me but on the positive, because it is not new to me I am at least able to know how to deal with it :)

 

Problems Weighing On Me.

I have been struggling a little today.

It is strange but perhaps understandable that when it comes to writing on a mental-health related blog I am reluctant to say I am feeling depressed when that feeling of depression is not severe and only a ‘low mood’ or a ‘deep sadness’ really.

I mean so many folk, including myself, suffer from very real desperately deep depression and there is therefore the potential, I think, to convince yourself that your ‘low mood’ or ‘sadness’ is somehow unworthy of note or comment.  But this would be very wrong would it not.

I have been toying with the idea of writing a post about relativity and how unhealthy even dangerous it can sometimes be to compare our own difficulties or suffering with that of others and as a result of that to lessen the relevance or importance of them.

The fact of the matter is that our difficulties and suffering are as personal to us as other people’s difficulties and suffering are to them.

One of my pet-peeves is when someone turns difficulties and suffering into a competition and has to make out or try to convince you that their suffering or their difficulties are much worse or even more serious or more worthy of comment or attention than yours.  I am sure many of us have encountered folk like that.  But I do find it so disheartening and so detrimental to healing.

It is just such a damaging thing to do and can lead folk with very real needs to stay quiet about them because they feel that either they themselves or their difficulties/struggles are so unworthy of help or mention.

Today I am struggling,  I am depressed.  Not deeply depressed, not depths of despair depressed – just very depressed.  I woke up extremely tired and lethargic and I have struggled with it all day long.  Additionally my thoughts have in so many ways been centered around my obesity and my struggle with that.

I feel, as I mentioned in my weight related blog, that I have all but given up in my fight to lose weight and that I am simply going through the motions.

How much this is effecting my mental health and indeed how much my mental health is effecting my fight to lose weight I just cannot say.  The link between them is irrefutable but as to the causality aspects or level of impact  of either I am just not sure.

Actually, the truth is that whilst I am suffering from this depression or low mood or deep sadness whatever you want to call it, I know that I can conquer this and that I will bounce back (at my size bouncing is fairly easy, it is stopping any bouncing that is potentially difficult). I of course have far less confidence when it comes to my fight with my morbid obesity which of course is one of the problems.

Tomorrow is, as they say, another day and so I am going to go to bed now and try to rest and to hope that tomorrow will see me wake in a better frame of mind and with more motivation.  It is all too easy, is it not to look at our mental health in isolation from other difficulties that we suffer or experience but the fact is that they do so very often impact each other and we need to be aware of that.

 

 

Bipolar Disorder and Sleep Patterns – New Poll.

Ok here is something different and please understand that this is new to me and so I am still muddling my way through it all – so please bear with me.

As a result of my own experiences, an article I read recently and a subsequent post that I published here on Voices of Glass, the whole question of sleep patterns within people who suffer from Bipolar Disorder has started to really interest me.

So in response to this I thought I would draw up a little poll or three and invite folk to share their own experiences.

I really hope you enjoy doing this and that I haven’t messed up the design of it.

Below you will find three very short polls.  All you have to do is choose one answer that is most accurate for you personally in each of the three sections.

Due to the way the polls are set up (or at least my very limited understanding of how they are set up) I have had to keep them fairly basic.  So if you are on mediation that affects the answers to the following questions please answer as if you were not taking medication.

Thank you for doing that poll, now please choose one from the following…

And finally this one…

I am so very grateful to you for completing these short polls.  I will be covering their results in a later post but I think I have enabled you to see the percentage results yourself.

If you run a mental health blog yourself, I wonder if you would please consider covering or reblogging this post and placing a link to it on your blog so that we can increase the potential numbers of folk participating?

Many thanks I really do appreciate it.

Something worth sleeping on.

Well the good news is that despite being exceptionally tired, I managed to get through yesterday’s hospital appointment relatively unscathed. Well apart from the massive amount of blood that was taken from me for testing, and the six-inch needle that was delicately inserted into my not so delicate gluteus maximus. Which I have to admit was a bit of a pain in the … (ok, so you get the picture)

Especially seeing as half-way through administering the injection the Doc remembered that he had forgotten to lock the consulting room door and so simply wandered off to lock it – leaving the needle based syringe just sticking out of me unsupported other than by that very long needle and it’s extremely wide target!

But then administering that particular treatment is a relatively lengthy process and I guess some form of decorum and sensitivity should always be observed especially when your patient is stood there with his trousers and underwear down around his ankles and his not so final resting place on full show!

The other bit of really good news is that all of the blood tests from my last visit came back showing really good numbers. Liver functionality, potassium levels, blood-glucose levels (a little high but nothing to worry about at this point), cholesterol levels etc all very good. So I a very pleased at the moment if not just a little tender and even more tired as a result of such a long day.

And talking of resting places and being tired, spending so much time at the hospital with little else to do did give me a chance to do some reading online and I came across an interesting study on Sleeplessness and Schizophrenia.

One paragraph in an article from – “Sleep Review” – ‘the journal for sleep specialists’ (which is actually a fully legitimate medical magazine and not just a periodical magazine for unemployed teenagers LOL) reads…

“We know many of the patients are essentially suffering persistent jet lag with their body clocks out of synch with day and night. This immediately opens up a lot of new avenues for research in understanding the links between sleep problems and mental ill-health. But regardless of whether or not there is a mechanistic link between the body clock and psychiatric conditions, it is clear that treating sleep problems could improve the lives of many patients,” said Russell Foster, head of the research team and professor at Oxford University.”

You can read more of this article here but it begins with the statement…

“British researchers have found that people with schizophrenia have profound disruptions in their sleep patterns, including irregular body clocks that are out of synch with the pattern of night and day. The researchers argue that the extent and severe nature of these long-term sleep problems should warrant treatment along with other symptoms of schizophrenia, as they have a strong impact on mood, social function, mental abilities, and quality of life.”

As a schizophrenic myself, and one who has (as regular readers of this blog will know) major problem with sleeplessness, I found this article extremely interesting and I truly believe that it could also have implications in respect of other mental illnesses.

One paragraph in this report which also especially attracted my attention  and which led me to the aforementioned conclusion was this one…

“The findings, published in the British Journal of Psychiatry, showed a severe disruption in the sleep patterns of all 20 patients with schizophrenia enrolled in the study, despite their mood being stable and each being on a regular drug regime. “

“…despite their mood being stable and each being on a regular drug regime” now there is an interesting statement don’t you think?

The benefits of getting ‘adequate sleep’ have long since been discovered and accepted just as, I believe, the disadvantages or negative impact of not getting ‘adequate sleep’.  But I think we have to consider whether or ‘sleeping for x amount of hours’ automatically equates to getting ‘adequate sleep’?

The benefits of anti-psychotic drugs, mood-stabilizers and antidepressants are obvious.  But I can’t help wondering whether they remove all of the effects of mental illness on the brain or whether they, along with our own cognitive behavior, simply reduce them to a more manageable level?

And I ask this because if the latter is true then it certainly allows for the consideration that actually even whilst we are asleep our brains are still functioning in difficulty.  I raise this point because I think that many of us, myself included,   do or have at some point or another seen sleep as a respite from having to deal with our mental illness.

If indeed our brains are very much still – even though we are sleeping – suffering from the effects of our mental illness this will of course potentially have tremendous effects on the level of benefit we may gain from our sleep and thus on our over-all well-being.

Doing all we can, therefore, to enable or encourage good or ‘adequate’ sleep for ourselves as mental illness sufferers (or for those whom we love whom experience poor mental health), has got to be advisable therefore.  Because whilst we may not be able to totally control what happens to our brains whilst we are sleeping surely we can influence and to some degree control such things as; the environment in which we sleep, the levels and types of stressors we encounter and/or the number and types of stimulants we ingest or that we take in audibly or visually immediately prior to sleeping and the number of hours that we afford ourselves in which to sleep.  Because doing this perhaps we will increase our brain’s chances of actually getting the ‘adequate sleep’ that we so obviously require.

And that is certainly, in my opinion, something worth sleeping on!

Bipolar Disorder – What will my children’s inheritance be?

Now whether it is as a result of my environment – having spent the day sat in hospital today with very little to distract my mind – or whether it is just that this thought has only just filtered its way through the cacophony of thoughts that have been bombarding my consciousness lately, I cannot tell.

But what I can tell is that the whole subject of the genetic implications of Bipolar Disorder and indeed how my bipolar disorder will affect my children have very much been at the forefront of my thoughts today.

As a parent who has been diagnosed with Bipolar Disorder the question, “how likely is that my child (or my children) will also have Bipolar Disorder?”  is I think a perfectly natural one and I would suggest one not only asked by parents.

Certainly it is my understanding that when it comes to genetic factors associated with Bipolar Disorder, the American Academy of Child and Adolescent Psychiatry (AACAP) state that studies focused on twins, adoption, and family history, have demonstrated a strong role that genetics plays in the development of bipolar disorder and that those with first-degree blood relatives who have or had bipolar disorder increased their own risk of developing the disorder by four to six fold. (1)

And let me tell you that as a parent who has been diagnosed with Bipolar Disorder myself that is, at first, quite a scary thought!

Actually in my own situation it is fairly academic at this time.  The fact is that I already have children. In fact although I was aware of my mental health issues even as a child – primarily because I ‘heard voices’ (which are actually associated with my schizophrenia) and exhibited numerous other symptoms – the diagnosis of Bipolar Disorder was not made until much later in life and long after the birth of my son.  In respect of my adopted children of course any one of them could possibly have Bipolar Disorder.

So if this is the case then why am I even considering the question, “Bipolar Disorder – What will my children’s inheritance be?”

Well the reason is simple.  It is because a) even though this diagnosis, for me personally, came long after the birth of my son, the fact is that I probably had the illness long before his conception and b) because when it comes to Bipolar Disorder and our children, their inheritance is surely more than just the sum of our genetics.

Actually those who know me well will know that I have numerous children – one biological and several adopted.  And let me tell you that in terms of differentiating between them ‘genetics’ is about the only area where I consider my biological child to be different to my adopted children.

In terms of my biological child, he is now 21 years of age and thankfully I see no indicative signs of his having inherited the illness (although that in itself is no guarantee) – and the poor lad didn’t get away totally free – he still has many of my characteristics and features poor thing. (Is there any hope for him I ask?)

And I think that is an important fact to remember.  The above mentioned statement from AACAP does NOT in any way suggest that children of Bipolar Disorder sufferers WILL inherit the disorder just that the changes are significantly (my definition) increased.

In terms of my adopted children some of them do indeed have mental health issues which of course have no link to my genetics since we are not biologically linked.

So that leaves us with the other consideration to consider – that when it comes to our children what in respect of our Bipolar Disorder will their inheritance be outside of any genetics?

I have to be totally honest here, and certainly this is a question that Stephen Fry tackled in his documentary ‘The Secret Life of a Manic Depressive’, in amongst the pitfalls, drawbacks, often traumatic and sometime devastating effects of this illness I experience numerous blessings and rewards that whilst I cannot prove are directly linked  to my having Bipolar Disorder I am convinced are greatly influenced by it.

Do I have Bipolar Disorder?  Yes, I do.

Does it often place me and those around me in a position of having to deal with manic episodes that include such things as;  expansive or irritable moods, a decreased need for sleep, racing thoughts, rapid or pressured speech, inflated self-esteem or grandiosity, excessive involvement in pleasurable but risky activities, increased physical or mental energy or activity and even hallucinations or delusions?  Yes absolutely!

Does it also place me and those around me in a position of having to deal with many opposing things such as; frequent sadness, hopelessness, decreased interest in activities and/or an inability to enjoy previously favored activities, along with bouts of persistent boredom, decreased energy, social isolation, poor communication, low self esteem and even guilt?  Yes it does!

Can I often be extremely sensitivity to rejection or failure, demonstrate increased irritability, anger, or hostility, have great difficulty with relationships and even be unable to undertake regular activities or hold down a proper job as a result of all of these things plus; poor concentration, major changes in eating or sleeping patterns, coupled with compulsive urges to run away and hide and even because of the regular thoughts or bouts of suicidal thoughts or self-destructive behavior?  Again absolutely.

But is this all I am?  NO not in a million years!  Does it make me unbearable?  NO of course not! (well only sometimes lol)  Would I want others and especially my children to see me as JUST a Bipolar Sufferer or to have any idea that being a Bipolar Sufferer  makes the sum total of my life NOT worth living?  NO, NO, NO, NO, NO!

I am a Bipolar Sufferer and I have other mental illnesses to boot and I will not deny this.  But neither will I apologize for it and neither will I teach my children to be ashamed of, embarrassed by, or even mournful of it.  Because the minute that shame, that embarrassment or that mourning becomes the focus then I, the person behind the illness, the parent who wants so desperately to demonstrate his love for them despite that illness,  become lost and no child needs to lose the right to his or her loving parent and no loving parent needs to lose the right to his or her children.

Bipolar Disorder – What will my children’s inheritance be?  Well if I have anything to do with it my children’s inheritance will be this….

A realistic knowledge of it.
A healthy understanding of it.
A real and reasonable expectation of the person who has it.
The ability to see, reach out to, relate to, and love the person who has it.
and above all else, the ability to be loved by the person who has it.

That, I pray, will be my children’s inheritance when it comes to Bipolar Disorder and here’s the deal, not only do I want that for my children in respect of their Dad who has bipolar but I also want so much for it to be for themselves if any of them do have it.

A Whale In A Sardine Can and A Sprat In The Sea

Yes I know that is a really strange title for a post but hey you should know me and strange titles by now and I promise it does make sense really.

First the Whale in a Sardine Can.

Tomorrow I am off up county for more treatment.  This entails me getting up extremely early tomorrow morning, making my way to the pickup point and then being collected by Hospital Transport and driven for a couple of hours up country to my appointment followed by a particularly long and tiring day before doing the whole transport thing in reverse in order to get home again.

Now please don’t get me wrong here.  I am totally sincere when I say that I really do appreciate having hospital transport as a service available to me here in Ireland and in truth I have no idea how I would make the journey and thus get my treatments if it were not for hospital transport.

However, hospital transport in this case means a particularly long and bumpy ride in a particularly small, narrow and very crowded mini bus and I am neither small nor am I narrow nor am I a very good traveler at the best of times.   In fact I am quite the opposite.

So if you want to imagine what it is like then picture yourself taking a whale jamming it into a sardine can, attaching the whole thing to the tail of a dog and letting a cat run past.  There now didn’t I promise the title would make sense and certainly that is the ‘Whale In A Sardine’ part covered.

Which of course only leaves the ‘Sprat In the Sea’ part…

For those of you who are unfamiliar with “sprats” (and I say that because I am mindful that this blog is read by people from numerous countries but unsure whether Sprats are actually called sprats in those countries) a sprat is also called a brisling or a bristling and is a small fish from northeast Atlantic waters, among other places,  that is often smoked and canned in oil and sold as – yes you guessed it – a sardine.

In much the same way that a sprat is small and living and not only very insignificant but also at great risk within an  a very large sea, so too does my sanity seem at the moment.  Within all the thoughts that appear to be swimming around my mind lately I am sure a small sprat-like healthy and rational thought or even a small school of them is in there somewhere.  Only tr0uble is that they really are so very small, insignificant and pretty much lost within such a big sea.

I have little to no doubt that actually this is but a continuation of what has been happening to me in respect of my mental health over the past couple of days but I have to admit that it does worry me some.

On a more positive note I am far more stable today/tonight than I was last night and I really do think that taking it easy all day today has helped in that respect.  I am however extremely anxious about what effect tomorrow’s traveling and hospital visit will have on me.  Actually I could very well have cancelled the whole thing tomorrow and rearranged it for another date but I am keen to try to push through it all and to see what happens.

Perhaps this will prove to be unwise and those little sprats of rational or healthy thoughts will be swallowed up by the seemingly larger and more aggressive irrational and unhealthy thoughts or maybe this will prove to give me greater confidence in respect of dealing with these situations in the future and what little rational and healthy thoughts appear to be there at the moment will survive.  I rally don’t know.  BUT I am keen to find out.

Crazy Glue, Internal Dialogues and Coffee

Growing up in England and now living in Ireland I know ‘Krazy Glue’ as its more common name of ‘Super Glue’.  But I have to admit that I much prefer the ‘Krazy Glue’ name – not least of all because I can replace the ‘K’ with a ‘C’ and use it as part of a title for a post and as a tongue-in-cheek explanation of what often happens after an episode like last night’s one.

Last night, as readers will no doubt have noticed, I had a manic episode.  I had been feeling weird pretty much all day long and this all culminated in a fairly severe manic episode late last night.  During a lull moment in all of this I decided – wisely or unwisely (that has yet to be determined) to journal what was happening here on this blog.  Part of me needed to verbalize what was happening and part of me wanted others, who may either experience similar things themselves or have loved one’s whom they see experiencing them, to know that they are not alone.

The good news is that I did manage to survive the night and to do so without inflicting too much harm to myself or anyone else.  I confined myself to my bed and refused to allow myself out of it regardless of the temptations and the irrational thoughts etc.  Actually, whilst not being entirely successful and whilst there was indeed some manic pacing involved I did manage to stay within the confines of my room and indeed a lot of the time to the confines of my bed.

Unfortunately at some point during the early morning someone crept into my room and glued me to my bed and it was virtually impossible to drag myself out of it this morning. This is nothing new and happens every time I go through a manic episode like the one last night.

Regardless of the time of day that the manic episode takes place the consequence is nearly always that I expend so much mental energy during them that I am forced to my bed to rest afterwards.  Once in bed there I stay and there I have to stay until I re-charge so to speak.  I call these the Crazy Glue moments.

Of course Crazy Glue moments don’t ensure sleep moments.  Sleep and I have a strange relationship as many of you will know.  Somewhere in my past I must have done something to really upset sleep and since then it refuses to spend very much time with me at all.

No, very often theses Crazy Glue moments simply place me in a captive state where I am left with very few diversions from the internal dialogues that often go on at these times and indeed very much during times of my mania.  Way back in April of 2009 I wrote a post on these dialogues and if anyone is interested or think they may experience similar things you can find that post by clicking here “The Dialogue of Me, Myselfs, and I” or by clicking on the Contents Page and finding it in the  list of contents.

Thankfully these Crazy Glue moments don’t usually last for more between a few and several hours and whilst I may still be a little manic, the level of mania does subside a little during them.  The Crazy Glue eventually wears off and I can drag myself out of my bed and reward myself with a much welcomed cup of coffee and also provide myself with some diversion from those dialogues.  Thus I can attempt at having an almost normal day – albeit one that is struggled through as a result of still being totally drained.

So that is where I am at right now.  I managed to drag myself out of my bed, get dressed, make a coffee and get to my desk here in my study.  I am so very tempted to go straight back to bed but instead will simply make sure that I do my best to rest (not sure relaxing is even possible at the moment) when I need to today.  I did however, want to take a moment to ensure folk that I am ok and to thank those who were kind enough to contact me and offer words of encouragement.

Rapid Cycling Thoughts and Moods

Rapid Cycling is very often used to describe the fast flip-flopping that Bipolar sufferers can experience in their mood cycles. Up one day, down the next day and so forth and so on.

Whilst it is possible, from what I understand, for a sufferer who normally experiences slower more protracted cycles to suddenly experience a period of rapid cycling it is I think fair to say that my understanding is that bipolar suffers generally fall into one of four camps.  Those who slow cycle, those who rapid cycle, those who experience a mixture of both, and those for whom no real pattern has yet been identified.

Actually, if I am honest, I have very real difficulties with the differing scales or guidelines that are used in order to qualify someone as rapid or non-rapid cycling. Additionally, and I am speaking from experience here, I think it is not uncommon for bipolar sufferers to have short isolated episodes of rapid cycling even in the course of one day.  Of course that may not fit into the frames set up by the experts but sadly my mental illness has yet to learn to be compliant with the experts’ definition and I have to say I know of very few people who’s mental-illness has.

I mention this because today has been  one of these days for me.  I am up, I am down, I am agitated, I am compliant, I am focused, I am confused.  I find myself going through all of these things and to be totally honest here I am typing this post extremely quickly for fear that my mood or I will change before the end of it and just delete the whole darn thing.

Over the past 20 minutes of so my mind has been racing.   Numerous thought processes all going at once, undertaking numerous tasks all at the same time, Devising and designing grandiose plans for my home that I know (now I am slightly calmer) will never take place or never even be attempted and indeed why should they – why in God’s name would you want a moat around a bungalow anyway?

I really, really dislike when my brain does this to me!  I dislike the effort it takes to keep up with my mind when it is like this and I dislike the extreme tiredness and dark depression that normally follows immediately after I have been like this.

All day long my moods have been flip-flopping and whilst I have been able to keep a lid on any stupid or reckless behavior, this has in the main been achieved through my isolating whenever I feel my mood changing.  I have an extreme (and I use that word most accurately) reluctance about letting people who are anywhere in my vicinity see me when I am like this or even know that I am like this when I am.  It scares me so who knows what it would do to them or how it would make them feel?

There is without doubt and ever decreasing sense of control that converts into an ever-increasing sense of lack of control when this happens and couple this with the unhealthy and darn-right harmful thought processes that often lay stalking me within my mind and which seem to grow in strength both in power and volume when I decrease in mental strength it is without doubt a worrying time.

Thankfully I am not alone in my home tonight.   My son and his partner are stopping with me at the moment and so there is at least some form of safety-net here.  If I were to suddenly go out at this time of night/morning my son would immediately realize that something was serious amiss and come and check on me and likewise if I get to the stage where I mindlessly wander around the house all night/morning he would also notice.

The advantage of this is of course that it drives me to my room and that has already been mania-proofed and so there is little damage that I can do in there or to myself in there.  I am grateful for this although I do know that in many ways this just prolongs the immediate torment but at least it reduces the potential for longer-term or resultant torment that usually comes after I have done something stupid.

Could that actually be what is happening with me?  Am I not rapid cycling at all today but instead experiencing the results of not giving into the mania and of trying to fight it? Or indeed am I in the middle, start or process of a manic episode and just not realizing it or accepting it?  I don’t know and can’t tell and to be totally honest if I am in the middle, start or process of a manic episode is my judgement sound enough to make that assessment in the first place?

Nope there is nothing else for it I have to go and rest and to try to ride this whole thing out. I know that I will not be able to rest and yet I owe it to myself to try, or do I?  Is it better not to try to to simply accept that which is going to come?  The voices tell me one thing, the thoughts another and my logic yet another.

I have just glanced at the clock and it is near two in the morning. Yes I need to go and try to rest. I know I will get through this the only question is when and at what cost. See now I am anxious. Ok time to take some form of control I am going to go and try to rest before this gets even worse and beyond my ability to have any form of control that is if I even have any left right now.

 

Supporting other bloggers

Someone recently asked me why I don’t have a blogroll listing other blogger’s sites on this blog and it is a good question.

Actually it is one that has a simple answer.  I just haven’t gotten around to it as yet.  But that is something that I can and will remedy shortly…

One of the primary motivations for this site is to offer support to others who suffer from mental health related issues and certainly this site is not alone in this.  There are a growing number of sites and blogs out there who have mental health and mental illness as their core theme.  I feel very strongly that the good ones are an excellent resource for folk and that we should all, as mental health bloggers, support one another and thereby help simplify the “seeking help and information process” that many mental illness sufferers and their carers go through.

So over the next week or so I am going to place a blog roll on this site that includes links to the other sites that I visit which have a mental-health and mental-illness related theme and which offer a positive perspective on these.

If you would like your site/blog on this blog roll please feel free to send me comment and let me have the address and I will try to check it out and then include it on my blog roll.  Additionally I will be contacting the owners and blogs and sites which I currently visit on a regular basis and asking them if I can include their blogs in my blog roll.

Obviously I cannot list every site/blog and I will only be listing those blogs which I myself frequently visit or will frequently be visiting. For example one such site which I have only just started visiting today is that of “Creativity From Chaos”.  As a writer with mental health issues myself I like to support other writers who have similar issues as me.

Sites and blogs that I will not be listing however are…

  • Sites and blogs that are commercially based or motivated
  • Sites and blogs where the opinions and beliefs expressed are in direct opposition and/or conflict with those I hold.
  • Sites and blogs which I feel portray a negative perspective on mental illness and mental illness sufferers.

In respect of sites/blogs that are commercially based or motivated, please understand that I do accept that some sites and blogs need to be commercially based but I have always  avoided this line for myself as I feel it can place the owner in a position where motivations can get clouded.

In respect of sites/blogs where the opinions and beliefs expressed are in direct opposition and/or conflict with those I hold, please understand that whilst I fully accept that others may have opposing or conflicting opinions and beliefs to me and whilst I totally respect their right to have these views, it would be wrong for me to do anything to encourage or endorse them.

I sincerely hope that I don’t cause offense in taking this line but I have to stay true to myself and my beliefs and I hope everyone understands.

Insufficient Funds Availabe – But Which or Who’s Funds?

Ever gone to the ATM, put in your card, punched in your number, made your selection, entered the required amount you wish to withdraw, hit the enter button and then waited only to receive a message flash up that says, “Sorry, You have insufficient funds available”?

Perhaps your bank and ATM’s use a different but similar kind of message?  But I am sure you know the kind of message I am talking about and I am pretty sure most of us have experienced this at one time or another.  Either because we have over-spent – perhaps as a result of a sudden unexpected bill, forgotten about something we paid out of our account, or because the bank or the ATM have messed up?

Well today my body is flashing up that message.  Only the type of funds I am trying to access isn’t cash, its energy and the plain simple truth of the matter is that it is not a bank error!  It is accurate and I have most definitely overspent when it comes to how much energy I have been using lately.

Over the past few days I have been doing a lot of work redesigning websites as well as; catching up on paperwork and filing and housework that ‘fell by the wayside’ during my last spell of poor physical and mental health and I blogged a great deal also.  I have without doubt worked way too long into the night/early mornings and am simply tapped out.

You see much like we are meant to manage our bank accounts and personal finances, so too should we manage our bodies.  But  of course managing our bank account or personal finances is a lot easier when we have sufficient funds coming in to cover the essential expenditures going out.  Likewise, of course, managing our bodies is also fairly simple when we have enough energy coming in to cover the energy expenditure going out.

But poor physical or mental health can  have a very direct impact on our body’s and our mind’s energy funds can’t they?  They make additional sometimes excessive demands on us and very often sudden and unanticipated demands.

Bipolar sufferers will often experience a series of high and lows. Periods of mania or hypomania in some cases, and periods of depression.  Of course each person’s experience of this is unique to them but there are often some shared commonalities.

I have friends who, when manic, go on major shopping trips – spending widely and recklessly and at rates that far exceed their finances.

Other friends of mine would, when manic, completely blitz their homes, cleaning and rearranging rooms and furniture, cupboards, bookshelves, wardrobes. Often without warning, commonly relentlessly and frequently at the oddest of times of night or early morning.

Of course then come the periods of depression which all too often are exasperated or aggravated by the results of the periods of mania.  Guilt concerning the over or reckless spending. Worry over how to pay for it all or how to cover normal bills, feed the kids etc. Dread over how to explain it to a partner, family, friends or the bank manager.   Frustration over the fact that the house is now spotlessly clean and yet somehow isn’t enjoyable and still isn’t how we wanted it in the first place.  Long periods of self-blame, and so the list goes on.

In my personal situation I have to confess that I have experienced both of these.

Trust me, I have done the whole reckless spending thing.  In fact giving me an unsupervised bank or store-based credit card is like giving a loaded machine gun with no safety lock to an epileptic ape with a twitchy trigger finger.

Fortunately I have learned from those painful early lessons in respect of this and now steer very clear of all credit cards and rely on debit cards only.  Although even now I have to be very careful. Debit Cards and ATM’s don’t understand manic behavior but at least they have a balance limit based safety net.

But when it comes to matters other than finances, such as energy levels I am, it seems, just as bad as I always have been.  And of course living alone as I do, there is no one here to calm me down or to help me control my behavior in this respect.

And I think that is a very important point. Isn’t it?  Yesterday I posted a piece about self-harming and my personal battle with it,  Some of the comments that I received made mention of the fact that this is very often hidden and not discussed by folk who either self-harm or by the friends and family of folk who self-harm.

Personally it has been my experience and understanding that this often happens in respect of a lot of mental illness and behavior and also experiences that are related to mental illness.

Because of the stigma or the shame or the guilt all to often implied, applied and/or misapplied  to it, we keep quiet about it when we suffer or do things that are reckless or harmful or detrimental don’t we?

But it is that silence, that secrecy, whether taken upon ourselves or forced upon us by the responses and/or reactions of others that very often removes us from the very help that we so desperately need.

There are no two ways about it.  Mental illness can have a devastating effect on the lives of those who suffer it and those who care for those who suffer it.  Finding and being offered the right kind of support is essential.

I am tired and I need to rest.  I know it, accept it, and acknowledge it.  I am going to rest today and I know that by including it here in this blog, my family and those who care about me will, on reading this post, respond by contacting me and checking up on me.  That kind of support is invaluable and one of the most precious things in my life.  And let me be totally honest here and I exaggerate not when I say this.  It is that kind of support that has saved my life on more than one occasion.

So if you are someone who does experience metal illness, or who self-harms, or who is experiencing something that is harmful or debilitating or detrimental to your welfare, or your health please, please consider finding the help you need.

If you are someone who knows or cares for someone who does or who you expect may suffer from mental illness, poor mental health or something similar, and have not already offered to help, why not carefully and compassionately talk to them about it and hey why not offer to help where possible and ask what help they need.

We all, when it comes to energy, the ability to cope, the motivation to work through things, etc., have limited resources in this life.  So when extra demands are placed upon them through; poor-health, mental illness or difficult times, having shared resources can not only help in very real and essential ways but can also be a life-saver.

And Now About Something Close To My Heart, Arms, Chest, Thighs…

Possible Trigger Warning

When I decided to start this blog – long before it also took the form of a website – I determined, and thus made a vow to myself, that I would do my best to always be open and honest and to not shy away from matters that were controversial or unpopular or difficult.

Since making that very clear and conscious decision I have – to all intent and purposes – very often laid myself bare and stood emotionally, mentally and spiritually naked for all the world (or more realistically the tiny little part of the world who actually read this blog or visit this site) to see.  And trust me, my not standing physically naked before you really is a blessing :)

Actually, when it comes to my mental health and even when it comes to my voices I try to be open and honest and have to admit that only occasionally do I experience reluctant or hesitation in doing so.  I figure how can I expect others not to assign any stigma to mental illness and those who suffer from it if I am assigning it to myself?

But when it comes to my self-harming it is a totally different matter.  I experience far more reluctance and far greater hesitation when it comes to posting anything about this.  Partly because I truly do believe self-harming, still has a huge stigma attached to it and partly because I am very conscious of and don’t want to add to anyone’s struggle with this.

However, studies show that writing and talking about this in a careful and sensitive way actually helps rather than hinders and so I have made the following decisions…

  1. I will not allow stigma to deter me from writing about this issue, my personal battle with it or from highlighting the issue of Self Harming, Self Injuring or Self abuse.
  2.  I will, through my blog and my writing, seek to raise awareness of this issue and thus try to educate folk as to the needs, causes and difficulties experienced in respect of it.
  3. I will, through my blog and my writing, acknowledge that the reasons and motivations for such actions are numerous and diverse and are not limited to those of my own.
  4. I will, through my blog and my writing, acknowledge that the methodology chosen for such actions are  also  numerous and diverse and not limited to those of my own.
  5. I will, through my blog and my writing recognize and acknowledge that self-harming can very often be as much a symptom of other issues as it is an issue in its own right.
  6. I will, when writing my blog, actively seek to address the stigma and harmful, judgmental or negative attitudes all too often applied in respect of this issue.
  7. I will be very careful when composing a piece or indeed approving comments related to this issue,
  8. I will openly but sensitively share any experience or knowledge that I have relating to this issue and that comes from my own personal battle with it or my involvement in the experiences of those who are close to me and for whom I have great love and affection.
  9. I will encourage other sufferers to seek help and support in their battle with this issue.
  10. I will display a logo on this site to show my commitment to this.

In terms of my own struggle with this issue it all started a very long time ago now and whilst it is at the moment pretty much under control I am of course very much aware that it is something that seems to be linked to my emotional, mental and physical health and as a result may well reappear at anytime even after long periods of absence.

Additionally, other members of my family also have struggles in this respect and I have to be honest here, their struggles always seem far more important to me than my own.

My personal reasons or motivations and indeed my personal methodology is, I feel, better suited for discussion in a different post but what I do want to say in this post is that there is hope and that there is help available.

One of the hardest and most harmful parts of this whole thing for me personally has to be the after-effects and the resultant emotions and thought processes from having taken the choice or course of action of actually harming myself.  Having to look at, attend to, and live with, the resultant wounds, often painful reminders and in some ways suggestive outcomes of my self-harming.

It is my fervent and sincere hope that by deciding to be more open about this issue in my life I can not only help combat it within my own life but also within the lives of other suffers, whilst at the same time providing an additional recourse for those who care for people also struggling with this issue.

The Blog for Mental Health 2012 Project – I’m In!

The “Blog for Mental Health 2012 Project”

As an author, one of the things that I do not do when I start a new book is read other people’s books.  It is a conscious decision that I take as I do not want my writing style to be influenced by anyone else’s.  As a blogger however, I regularly read other blogger’s blogs and have never really given a thought to my being influenced by their writing style.  I guess the difference is that blog posts tend to be very short and I do read quite a few different ones.

One of the blogs that I read is Lulu’s “As The Pendulum Swings” and readers of this blog will have heard me mention her work before.  Another’s is Fracturedangel’s “The Mirth of Despair” blog.  I have to admit that I have only just come across Fracturedangel’s blog but I am really pleased that I have.

Last night I began reading it and came across the “Blog for Mental Health 2012 Project” and I have to say, “Sign me up! I am in!”

The name pretty much says it all but here are the rules…

1.) Take the pledge by copy and pasting the following into a post featuring “Blog for Mental Health 2012″.

I pledge my commitment to the Blog for Mental Health 2012 Project. I will blog about mental health topics not only for myself, but for others. By displaying this badge, I show my pride, dedication, and acceptance for mental health. I use this to promote mental health education in the struggle to erase stigma.

Ok Done that!

2.) Link back to the person who pledged you.

Well in all honesty I wasn’t really pledged so much as I pledged myself.  But isn’t linking back to yourself the first sign of madness?  Or is that talking to yourself?  What do you think Kevin?  Ooops!

But seriously I would have to credit Fracturedangel and Lunasunshine for my getting pledged and so here are links to them  “The Mirth of Despair” and “As The Pendulum Swings“.  My heartfelt thanks go out to them!

3.) Write a short biography of your mental health, and what this means to you.

Ok here goes…

My battle with poor mental health started way back when at a time when “someone’s pad” was something they wrote on, being “wicked” meant the opposite of what it means on the streets today, and when PMT or PMS was not so much a widely recognized condition experienced by women but more a week or so each month when husbands scurried around trying to work out how they messed up this time?

I am of course using a little humorous license here but what was not humorous is the way in which folk who experienced mental-health related difficulties were treated and the terrible stigma that was attached not only to the sufferer’s of poor mental health but also to their family.

Being a young child with poor mental health and who “heard voices” etc was both very confusing, very scary and very alienating.  So they, and society’s attitude to mental health, pretty much drove me into secrecy and seclusion.

As I grew older I of course became bolder and at the same time society’s understanding and attitudes changed towards mental illness – although it still has a very long way to go.  As I grew bolder I began to open up more and share more about my mental illness.  Although it wasn’t until 1999 when I had a complete mental and physical breakdown that nearly ended me and which certainly was instrumental in ending my marriage, when I could hide it no more and had to “come clean” as they say.

Over the years I have received numerous diagnoses including, Depression, Clinical Depression, Depression with Paranoia, Depression with Schizophrenia, Depression with Schizoaffective Disorder, Bipolar Disorder or Manic Depression, Post Traumatic Stress Disorder, Borderline Personality Disorder, Multiple Personality Disorder or Dissociative Identity Disorder, Aspergers, Psychosis, Obsessive Compulsive Disorder, Nightmare Disorder,  Social Anxiety or Social Phobia. Suicidal Ideation, Suicidal Ideology, Suicidal Tendencies.

Nowadays, I find a complete reluctance on the part of the psychiatrists and mental health practitioners whom I see regularly to “label” my mental health issues and to be honest it is a reluctance which I share – albeit in my case it is more of a hesitance than a reluctance.

I simply accept the argument that “my ‘symptoms’ could indicate any one of several serious conditions and that pinning it down to one or the other could therefore be wrong and would be counter productive.”

I am not, you understand, saying that I accept this argument willingly or happily and indeed when my therapist said to me, “you aren’t happy with that answer are you?”  I simply responded, “Well, there are several ways in which I could answer that question and which would indicate how I feel about it, but pinning it down to one answer or the other could be wrong and would be counter productive.” :)

Thankfully, nowadays I am in a position where I no longer have to hide my mental illness and I apart from casual acquaintances I would think that pretty much most people who know me to any significant degree would also know that I suffer with poor mental health.

In short I refuse to live a life of secrecy or stigma when it comes to my mental health issues.

4.) Pledge five others.

Ok this one is going to be a little more difficult as I don’t really know other mental health related bloggers very well.

But if I had to nominate five other bloggers or blogs who I would consider good people to get involved with this project and whose work in this field I truly respect they would without a doubt be…

  1. As The Pendulum Swings
  2. bi[polar] curious
  3. James Claims
  4. livingwithablackdog
  5. The Mirth of Despair

And I think that pretty much covers it. But I did just want to include a statement that was also included in Lunasunshine’s pledge….

If you happen upon this without being pledged, I still pledge you. Feel free to take the pledge! Promote awareness!

If Tears Could… Mine Would… And If That Wasn’t Enough… Mine Would…

T0 the few I know and the many I do not know but who read this blog and who are hurting…

If Tears Could….

Speak

mine would ….

tell you that there is hope

tell you that You are not alone

tell you that You are worth loving

tell you that You are worth the living.

And if that wasn’t enough…

Mine would….

Show you to my heart and let you see how much I mean those things.

-oOo-

If Tears Could….

Heal

Mine would…

be as precious as you are

be freely available to you

be sent to you in a bottle to salve those scars you wear.

And if that wasn’t enough…

Mine would…

Cry you a river.

-oOo-

If Tears Could…

Reach Out

and welcome you

and affirm you.

and embrace you

And if that wasn’t enough…

Mine would…

Carry you to that river of tears and let you bathe in their healing.

–oOo–

Introducing Mr Anhedonia

In this post/article I would like to discuss something very personal and in many ways very painful to me…

Allow me to introduce Mr Anhedonia to you.  But please understand that I do so not because he deserves recognition in your life, but because you deserve to have the recognition that he may well be in your life – if indeed he is.

I truly mean it.  If there is one name that I believe every person with depression or mental health related illnesses should be aware of  it is that of “Anhedonia”.

Mr Anhedonia is Greek, well actually to be more accurate his name is Greek and means “without pleasure”. Aptly named since “an” means “without” and “hēdonē” means “pleasure” and because that is the primary characteristic of Mr. Anhedonia, (A secondary characteristic seems to be his expertise in stealth) a lack of pleasure is synonymous with him.

But to imply from this that Mr. Anhedonia is without pleasure would, I think, not be right.  No, not right at all.  Because Mr. Anhedonia is not a person without pleasure.  No Mr. Anhedonia’s presence in your life causes you to be without pleasure.

You see actually Mr. Anhedonia is not a person at all.  Mr. Anhedonia is a condition or more accurately a symptom.  A fully fledged, widely accepted, medically recognized condition or symptom within the fields of psychiatry and psychology.

It is just that Mr. Anhedonia is not very well-known by those who suffer from mental health related illnesses and not often mentioned even when someone has been diagnosed with a related mental health condition.  In fact, from what I can tell, up until the late 1980 Anhedonia was pretty much overlooked or ignored.

Present mainly in the lives of folk who suffer from poor mental health such as depression and especially those who experience mood disorders, schizoaffective disorders, schizoid personality disorders, and schizophrenia he can have a devastating affect on sufferers’ self-image, outlook. and relationships.

Have you ever met someone of whom you have thought, “Man, they can suck the fun out of everything!”  Well that is Mr. Anhedonia.  The only difference is that, as I say, Mr. Anhedonia is not a person at all but a condition and one that is it seems an expert in stealth – what with not often being mentioned or acknowledged when a patient is diagnosed with a related mental health condition.  Let me give you an example…

Firstly of that stealth that I mentioned…

The presence of old Anhedonia in someone’s life will without doubt be felt.  But will it be identified?

I personally have had mental health issues all of my life or certainly for as much of it as I can remember.

As a child (primarily because of my family situation, the time I grew up in and society’s attitude towards mental health at that time) I soon learned to keep my mental health issues and the voices that I was hearing to myself.  Despite my best efforts however, I was packed off to see psychiatrists.  I described some of my symptoms and hid others and had it not been my choosing to do so as a result of my immediate dislike and distrust of the psychiatrists I saw at that time, my life would, I fear, have been very different.  Even so some of the symptoms that I did venture to share were classic to Anhedonia.

As a teen, yet more psychiatrists and despite my being slightly more open and thus receiving an actual diagnosis there was still no mention of Anhedonia.

As a young man, more psychiatrists and yet more and different diagnoses and yet still no mention of Anhedonia.

All through my adult life, and I should perhaps point out that  I am 50 years old this year!, I have seen numerous different psychiatrists, psychologists, psychoanalysts, therapists, cognitive therapists, doctors, specialists etc. And have on numerous occasions with them discussed the symptomatology that I now know to be classic to Anhedonia  and yet not one mention!  So as you can see old Anhedonia’s expertise at stealth appears unquestionable.

And what about the impact of Anhedronia?

I guess, if I am being honest and objective here, I do need to recognize or at least acknowledge that there are some cross-overs between symptoms when it comes to mental health related illnesses.  Additionally I also (as I always like to do) make mention of the fact that I am not an expert nor am I am mental-health practitioner.  I am but a mental health sufferer and survivor.

But that having been said let me tell you that even though I cannot even begin to count the number of times I have explained or described to a consulting psychiatrist or mental health practitioner what I now know to be classic Anhedonia – such as “an inability to experience pleasure from activities usually found enjoyable”.  Not once did I receive an explanation of what I was experiencing, or a label for it, or acknowledgement that actually it is quite common for folk with the type of mental-health issues that I have to experience this.

And trust me, Anhedonia and the failure or lack of explanation or diagnosis has had a devastating effect on both myself and my relationships with other.

Its impact on relationships.

I think it is worth re-emphasizing here what I have just said.  Not only does Anhedonia have a complete impact on a sufferer’s relationship with his or her self but it can and probably will also have a very deep and significant impact on a sufferer’s relationship with others – especially with his or her family, partner, or spouse.

Relationships are after all built of bonds, commonalities and mutual connections.  Experiences and interests “enjoyed” between a husband and wife or between two lovers or between family members produce a commonality, a bond, a mutual connection between them and these are very much part of either the building blocks of relationships or indeed form part of the glue that binds those relationships together.

Consider this, if you will.  How demoralizing and destructive can it be when one partner or one person in a relationship fails to enjoy an activity or interest or event that the other(s) fully enjoy?  Especially where neither partner or person can fully explain or understand this apparent lack of enjoyment on the part of the one not enjoying it.

Let me ask you this – What would be your natural tendencies in this situation?  Would it be to blame the event or the interest or the activity?  Or possibly to blame the other person?  Or to blame yourself perhaps?

And what if this is not a one-off or an infrequent thing or even specific to one type of activity?  What if it is a regular or frequent thing and happens in respect of a whole plethora of activities or events?

Certainly the opportunity to blame the event, or interest, or activity is removed or at best reduced in these circumstances and thus the potential to consider whether the fault lies closer to home much greater.

Phrases such as, “Is it me?”, “Is it something I have done?” become common place either in communication or in thought.  And if part of that ‘building block’ or that ‘glue’ that I mentioned before and that binds people together is missing and the reason for this not understood such sadness-based and questioning phrases or thoughts are not only natural but are often joined by others such as, “we are drifting apart and I don’t know what to do about it” or “we are falling out of love and I don’;t know how to repair it.”

And it can get much worse and much more personal…

Add to this Anhedonia’s close cousin Sexual Anhedonia – sometimes experienced as a result of a number of possible causes including the use (or previous use) of SSRI antidepressants or of antidopaminergic neuroleptics and you really have a recipe for disaster, unless their presence is clearly recognized, acknowledged and understood – Trust me I speak from very real experience here.  (And there was I thinking I was just a lousy in bed LOL)

In my opinion, enjoying intimacy – be it physical, emotional, mental, spiritual or sexual intimacy – is not only invaluable to a close personal relationship but is in many ways essential.  Generally speaking we are hard-wired to need it, desire it, crave it, yearn for it.  There can in my opinion be very few equals when it comes to what is essentially a selfless selfish desire and our need for it.  And I say that meaning to imply no negativity whatsoever.

The withdrawal or absence of these or even the withdrawal or absence of an enjoyment of these can strike a devastating blow to any relationship unless the cause of that withdrawal or absence of enjoyment is identified and understood and thus compensated for, or worked around.

How do I know this?  Well let’s just say that I am a 50-year-old single parent whose marriage ended several years ago mainly as a result of my mental health related issues  not least which being, yes you guessed it – old Mr. Anhedonia and his cousin.

So if you think that this may be a part of the symptomatology that you or someone you love or care for experiences I encourage you to do more research on the whole subject of Anhedonia and to speak with your mental-health practitioners about it.

As I said before, I am no expert nor am I a mental health practitioner myself, I am but a mental health sufferer and survivor and I speak from very real experience in this matter.  And whilst I have tried to approach this subject from a fairly simplistic and light-hearted perspective I do so not to over-simplify it nor to deny or hide the very real hurt that this has caused and in some ways is still causing in my life – especially with what few relationships I have left.

I am as I said a 50-year-old single parent father whose marriage ended so,e years ago.  But I am also a guy who is isolated for a very large portion of his time – not through desire or because he necessarily enjoys being isolated -  but because he lacks that ability to desire or to enjoy the alternatives.

It is my sincerest hope and my fervent prayer that not only can this be reversed in my life but that as a result of this post/article perhaps others will be able to avoid some of the pain and suffering I have experienced as a result of not knowing about or understanding this symptom or condition.

A Different Way of Seeing

Let me ask you this – “How do you see me?”

It is an interesting question don’t you think? I mean do you see me as a person, a blogger, a persona and blogger, a person with mental health issues, a blogger with mental health issues, a person and blogger with mental health issues? Or perhaps something totally different.

How others see me is by no means a fixation of mine but it is something that interests me – especially when it comes to my mental health and how it affects the way others see me.

I am a big guy, a very big guy, I am morbidly obese and have numerous health issues and I walk with a cane. Sometime ago I was walking down the road and across the road one youth turned to his mates – there were a group of them and said, “Look at the fat guy with the walking stick”

Ah the blessing that is young people and how sweet to announce my presence – what with me being so tiny that no-one else would have noticed me NOT! Did that young person see another human who has health issues and needs a walking stick to get around? Did he see another human being and one who has numerous health issues and thus has a constant battle with his weight and mobility? No of course not and indeed why should he?

Of course my walking stick and my morbid obesity are very obvious. My mental health on the other hand, well now that is a different matter entirely. Most of the time, thankfully, you actually have to get to know me to know that I struggle with poor mental health since I tend to withdraw and isolate when my mental health is so bad that it becomes very noticeable.

Of course it may be that you have gotten to know me only a little but that I have been upfront and forthcoming about my mental health. The truth is that I do tend to be more candid and open about it nowadays. I spent years hiding it but learned that actually all this does is afford me the opportunity to invest in relationships that all too often suddenly change once something goes wrong and I am unable to hide my mental health issues. Why does this happen? Is it because I suddenly change once someone knows about my mental health? No I don’t think I do. What changes is the way people see me once they become aware of it.

You see, as I have said before, mental health can be like a bubble. It can separate and isolate to varying degrees. It can distort or magnify to varying degrees. It can smother and it yet it can protect.

Here’s an interesting bit of fun for those who do know me or who have been following this blog. Below are a series of photo’s that I have manipulated of me an my mental health bubble. Take a look at them and consider which one is the closet to how YOU see ME…

Picture 1 of Me

Picture 1 of Me

This one?

Picture 2 of Me and the bubble that represents my mental health.

Picture 2 of Me and the bubble that represents my mental health.

Or this one?

Picture 3 of Me and the bubble that represents my mental health.

Picture 3 of Me and the bubble that represents my mental health.

How about this one?

Picture 4 of Me and the bubble that represents my mental health.

Picture 4 of Me and the bubble that represents my mental health.

Ok How about this one?

Picture 5 of Me and the bubble that represents my mental health.

Picture 5 of Me and the bubble that represents my mental health.

Hm, What about this one?

Picture 6 of the bubble that represents my mental health.

Picture 6 of the bubble that represents my mental health.

Ok, what about this one?

Picture 7 of Me and the bubble that represents my mental health.

Picture 7 of Me and the bubble that represents my mental health.

Or do you think this is more accurate?

Which of those pictures featuring me and/or the bubble that represents my mental health is closest to the way that you see me?

Of course it is a question that I do not expect you to actually answer.

You see some questions are asked not in order that you share the answer with the person asking the question but so that you actually consider the question for yourself.

In this exercise I have used a picture (albeit not tremendously recent) of myself and one of a bubble and I have merged them to varying extents in order to demonstrate the fact that actually people do see me in different ways.

Some see just me and ignore my mental health, others just see my mental health and thus don’t get to know the real me.

Yet others have varying degrees of focus on me and/or on my mental health.  How they interact with me, how they accept me, communicate with me, love me, interact with me, seems to depend entirely on how they see me and on how much they focus on me versus how much they focus on my mental health.

And here’s the rub of it all.  Whilst how people choose to see me and thus accept or indeed not accept me as the case may be, sometimes hurts me.  The fact of the matter is I am a big guy who has had this mental health for most of my fifty year life and I can pretty much cope with how people choose to accept me or not accept me.

But what of others?  What of those who are perhaps younger, perhaps less experienced, perhaps less confident, less secure in who they are?

What of those  who are truly struggling to accept themselves and their own mental health issues, let alone accept that others can and will truly accept them?

And what about where it isn’t mental health that is the issue?  What about those with other challenges or circumstances or illnesses or deformities to deal with?  What about the cripple, the blind man, the person with downs-syndrome?  What about the homeless guy in the store front doorway trying to get warm?  What about the Aids sufferer?  What about the refugee? What about the……  and the list goes on.

And what about you and the issues or challenges that you have to deal with?  What about the way that YOU see YOU?

How you see me will have a direct impact on how you treat me, just as how I see you will have a direct impact on how I treat you and how I allow you to treat me.  But whilst I have indeed asked you, via this post, to consider how you see me, I am not asking you to change that.  No.  I only did that to make a point and to invite you to think about how we all see each of and how we treat each other subsequent to that.

No.  What I am asking you to consider is not really how you see me at all.  But how you see others and how you see yourself and in so doing to consider how you treat others and how you treat yourself.

And let me very open with you here.  I ask this not because I know for certain that you need a different way of seeing others and yourself but because I am fairly sure we all – including me – need a different way of seeing.

Yay an award! Now that is a blessing and somewhat bemusing!

I am just so very blessed by this!  I came home from hospital yesterday and checked my emails before falling into bed and staying there and found that Lulu – from As The Pendulum Swings blog – (a blog I really enjoy reading) has nominated me for the Versatile Blogger Award.

I am so blessed by and so grateful for this.  I have often mentioned how grateful I am for all the support and encouragement that I receive via comments and emails and Skype etc. Additionally, I have to be honest and admit that I am often bemused by how many followers this blog has both here and on Twitter and at how many hits/views this blog receives. But to be nominated for an award now that just blesses and bemuses me ever further.  I am so very, very grateful and humbled by the nomination.  Thank you Lulu

And having received this award I understand that there are rules that I should follow.  Rules?  Rules I have to follow?  Do I do such a thing?  OK I guess I can LOL.

Apparently they are as follows…

  1. Thank the award-giver and link back to them in your post.
  2. Share 7 things about yourself.
  3. Pass this award along to 15 recently discovered blogs you enjoy reading.
  4. Contact your chosen bloggers to let them know about the award.

Hm, OK so that isn’t going to be so easy!

As for the first rule I have already done so and of course would have done so as a matter of basic courtesy.  I really do appreciate the award and the blog of the person who nominated me.

As for the second rule “Share 7 things about yourself.”

I have an ’About The Author’ page which I hope details some fun trivia-based facts about me but this I feel calls for more depth than that offers so here goes…

1.     I am a Christian…

I fully and totally believe in God and Christ and I have dedicated my life to Christ. BUT I am neither a fanatical nor a fundamental Christian.  I understand the arguments that others put forward against the concept of a deity and I fully respect other people’s right to a different or a non-belief just as I ask folk to accept my right to my belief.

2. I am a single guy who is coming up to being 50 years old, and yet am I?

In many ways (as I am often told) I am much older than my years – in experience, outlook, and presence.

[LOL this kind of statement always makes me think of myself as a figure of an old man sat in a high-backed chair in the corner of some room and all covered in cobwebs. Sitting there silently, only raising my weary head only now and then, in order to throw out some relevant or thought-provoking comments but just as likely to throw out a mischievous or cheeky observation. But I am sure that is not what is meant by that description.]

And yet in other ways I am but a boy. A small lost boy – uncertain of this world and this life and unsure of the path that I have to follow in this world – a world that seems so very alien to me.

3. I have been street homeless and am a recovering drug addict

Leaving my home and family and the girl I loved, I went to live – sleeping rough – on the streets of England doing so for several months.

Whilst living on those streets I got heavily into drugs and it all but killed me.  I am now some 26 years clean and although I still have the occasional craving when things get really bad I am so grateful that I am now free of it.

4. I spent many years in full-time Christian ministry

My young adulthood was spent in full-time Christian ministry within the Social Care sector working with; the homeless, teenage runaways, drug addicts, mental health clients and single parent families.  I have worked on the front line of this field at both the grass-roots level, lower middle and upper management levels and yet of all of them I much preferred the grass-roots level.

5. I am married but separated

I married the love of my life some 25 years ago now and whilst we separated some 6 years ago and have no plans or desire to reconcile I am fairly sure that I shall never marry again as I don’t feel this would be right.

I have never stopped loving my wife and don’t think I ever will.  I understand why she left and I hold no ill-will towards here whatsoever and get hurt when others criticize her for leaving as a) it demonstrates a total lack of understanding of who she is, how difficult it can be to live with me, and of the circumstances we were in and b) it demonstrates a complete disregard for my feelings and the love that I still have for my wife.

6. I am a father

I have one biological son from my marriage and I have many adopted children and grandchildren of various ages.  Some are ‘all-grown-up’ now and some are still growing but they are all so very precious to me and each ad every one of them special in their own individual way.

7.  And finally, I am an unorthodox passionate bundle of contradictions

[I love that little phrase!  It says so much and yet so little at the same time.  It invites further inquiry and has the potential to conjure up so many thoughts and questions.]

Well by using that label I simply mean that I am a passionate man but that my passions do not conform to modern-day society’s norms or expectations…

I am ‘asexual’.  By this I mean that I am not really very sexual at all.  I like sex but then I dislike it more than I like it and I can’t say that I actually enjoy it.  I hold spiritual, emotional and mental intimacy far more important than sex.

I consider physical tactility important and precious yet I dislike being hugged.

I love words and am passionate about writing and poetry and literature and yet I dislike so very much the way that words are used today – more in attack than attraction – more predominant in destruction than construction – vehicles of oppression and suppression much more than of liberty and aspiration.

I love art and really enjoy drawing and painting and sculpting but consider so very much of what has been called “art” nowadays to be nothing more than an undeniable revelation of how the secretly-unconfident, self-important and powerful few will so readily accept the untalented offerings of others just so as they don’t have their own

talents or uncertainty or insecurities brought into question and as a result of this be revealed as not being quite as expert as they make themselves out to be!  (Hm, what was that I was saying about disliking how words are often used to attack rather than attract?)

I love music but I dislike so very much of what is called music.  That is not to question whether it has any right to be called music or indeed to question anyone’s right to listen to it.  I simply find so much of it to simply be nothing more than a series of foul, offensive, or sexually suggestive even sexually explicit lyrics all often poorly weaved together with repetitive noise and synthetically generated outputs.  But then I am older and a parent and a Christian and a singer.  I love singing and I adore singing lyrics that love and welcome and inspire and invite towards beauty and furtherance and passion.

-oOo-

So there you have the required seven facts about the author (albeit that there are more than seven in that whole offering.  I hope you enjoyed them and that I didn’t offend too many folk in the process.

Which brings me to the third rule, – 15 blogs that I have recently discovered and that I enjoy reading.

And here I think I am going to struggle…

I read so many blogs – some infrequently and others frequently – and it is difficult to choose but 15 that I enjoy.

Additionally I wouldn’t necessarily want to suggest that by reading these blogs I endorse or agree with the views, persuasions or opinions put forward in or held by the authors of all of them.  I simply enjoy them and find so many of them challenging, thought provoking even inspirational in some cases.

And that having been said, here is my list and in no particular order other than alphabetically…

  1. 25Pillsaday/Fibromy Awesome
  2. An Imperfect Christian’s Blog
  3. As The Pendulum Swings
  4. bi[polar] curious
  5. Danii’s place
  6. I Was Just Thinking
  7. James Claims
  8. livingwithablackdog
  9. Lordemannuel’s Blog
  10. Manic Muses
  11. Mercy Me’s Blog
  12. Pick Me Ups
  13. Stephen Fry’s Blog
  14. The Birds and Bees and Me
  15. The Sandwich lady

And having now listed them I would like to congratulate and thank them all.  I am not easily impressed or entertained and each of you have done just that.

So that is the first three of the four rules that I should comply with having received this award. I am now off to comment to or email each of the authors of the blogs that I have listed and let then know that I have nominated them and thus they too have received the “Versatile Blogger Award”

To Lulu who gave me this award.  My heart-felt thanks.  I really enjoy reading your work and having a nomination from you really does mean a lot to me.

Um, you didn’t happen to notice where I left my mind did you?

With the same frequency as other people seem to lose or misplace their keys or their spectacles or their cell phones, I seem to lose or misplace my mind.

Hm perhaps I should have one of those little noise responsive key rings surgically attached to it.  Do you remember those thing?  I don’t think they ever really caught on but were a little key ring that would flash and play a sound whenever you whistled in their general vicinity.

It occurred to me, late Thursday evening, that I had a hospital appointment in Dublin this week.  Only problem is I couldn’t remember which day it was for.

I recalled having my last hospital appointment in Dublin back at the end of November.  I go there every four weeks for treatment and spend the day their being seen or treated by four or five different doctors etc all in the same day.

I also recalled there being some conversation about my not being able to have my next (four weekly appointment) in December when I should have had it because of it falling during the Christmas and New Year period and thus it being slightly delayed until this week.  But I couldn’t for the life of me remember what day this week.  I thought it might be either today or tomorrow and so just to be safe booked transport for today.

This led to a frantic and wide-spread hunt by officials and numerous volunteers and which spanned several rooms, numerous coats, drawers and boxes and that proved to be fruitless and which eventually had to be called off as a result of poor light and adverse weather conditions. OK I admit it, that last bit is just me being silly actually I just gave up looking although I really had pretty much exhausted all logical possibilities.

Friday I made numerous calls to the hospital in order to check with the department I was to be seeing but got no answer and then in the end left a message for that department or somebody from it to call me back.  I even sent them a text but received no responses from either attempts.

I should perhaps explain that I live in Ireland and the Irish do have a very laid back “Ah sure, it’ll be grand” attitude to a lot of things – it can be most frustrating at times but generally is quite endearing and is all part of what makes the Irish so loveable.

But I digress slightly.  So all weekend I searched for this appointment card checking and re checking and then checking again every possible logical location I could think of but to no avail.  Additionally I searched, checked, rechecked and then checked again my brain for a hint of recollection of the elusive date of the forth-coming  appointment but again to no avail.  I even scoured this and my other blogs in case I had made mention of the date.

It is one of the aspects of my mental health that I find the most frustrating.  I know that I am making the whole thing seem slightly humorous and am indeed explaining what happened in a somewhat jovial manner now it is over  but the truth is that I really do struggle with this self-doubt and uncertainty over certain things and my mind just won’t let up about it.  I cannot even begin to express how difficult a weekend it has been for me over all this and yes I know it is silly and at the end of the day it is only a hospital appointment but then my mind is like that.  I am sure others will understand exactly what it is like.

Anyway, so last night I dutifully fasted all night and very early this morning I got up and, having booked the transport just in case, decided to go to the Hospital just in case it was today.  Again – for the point of clarification – I should explain that I have to leave to go to Dublin very early in the morning as I live at least a couple of hours away by transport and the endocrinology department I have to attend doesn’t start until 9am.  By which time of course I was two-thirds of the way there.

Arriving at the Department and going to the reception, I gave my name and was met with a puzzled expression on the face of the receptionist and the announcement that my appointment wasn’t until tomorrow.

AAARRRGGGGGGHHHHHHHH!!!!!!!!!!!!!!!!!!!!!

See I knew that would happen!  I just knew that when I arrived today I would be told my appointment wasn’t until tomorrow!  But then I also knew that had I not gone today and turned up tomorrow I would be told that I had missed my appointment as it was for today.

See that is what my mind does to me!  It plays games with me and unless I have total prove to the contrary it flagged up numerous possibilities, probabilities or scenarios etc.  I get so very tired by this constant battle with my mind and so frustrated by the lack of certainty about certain things when I am usually so very sure about other things.

Thankfully it all turned out alright.  I explained what had happened and that I really had called several times on Friday and even left a message.  At first the receptionist was a little doubtful explaining that although she personally wasn’t working on Friday, if I had left a message a note of it would have been made in their diary on Friday and someone would have called me back.

Again I started to doubt myself.  Had I really called them?  I was sure I had called them! But what if I hadn’t called them and only thought that I had called them?  Despite the battle with self-doubt that was waging in my mind at the time I explained that I really did think I had called several times on Friday and even left a message.

Knowing a little of the struggles that I have mentally and seeing the frustration with myself and the situation, the reception – who really is very nice – again explained that she personally wasn’t working on Friday but that had I of called there would have been a note of my call and message made in the diary and a note confirming they had returned my call.  She even picked up the diary and turned to Friday’s page to show me that it wasn’t there.

LOL One slight difficulty with that last gesture however.  My name and a record of my call was there!  What wasn’t there however was any mention of anyone having called me back!  (Which would of course be because they hadn’t!)

Several apologies later and she had very kindly arranged for each of the people I was due to see tomorrow to actually see me today albeit much later in the day.

I cannot begin to express the relief that is experienced when you find out that you didn’t make it all up in your mind – the having called on Friday part I mean, and yet all this is still within a mental malaise of having forgotten the original date and misplaced the appointment card in the first place.

So with that in mind, and so as not to have a repeat performance of all this) my next appointment is for additional treatment Tuesday next week (17th January 2012)  at 11.00 and I have to fast from the night before and the next normal appointment is for Thursday 23rd February 2012 at 10.30 – although I have to reschedule that one as I am already in Dublin seeing my daughter off as she flies back to the States that day having been over for a vacation for a couple of weeks.

I have also written these appointments in my diary (which of course I didn’t have for this year back in November) and on my new phone.

Getting home from the hospital I was so very tired.  The physical exertion coupled with the mental conflict all weekend had taken its toll and done a number on me.   Coming indoors I fed TJ my dog, grabbed something to eat for myself and then fell into bed and stayed there until now.

Of course my brain wasn’t resting whilst I myself was laying in bed recouping from the day’s activities. No of course not, it wouldn’t do that now would it.

No, instead  it, and thus I, have processed everything that has happened and performed a full postmortem on the entire weekend’s, and of course today’s e,vents.  It is another facet of my mental health, things that happen never just happen they always have to be processed, reviewed, put through  a full postmortem with full accountability being expected and demanded of myself.

I am convinced that this inability for my mind to shut down or even slow down is part and parcel of my inability to sleep and that this  in turn is part of my inability to focus sometimes and my inability to remember sometimes.  It is the “crazy loop” as I call it.  A cycle of connected impacting effects that are all detrimental too each other and thus me.

The question is, “is this simply a loop or is it a spiral staircase leading down into the padded cell of insanity?”  Of course the question then becomes, “and if so how far down that staircase am I?” or “at which point on that spiral staircase do I misplace my mind for ever?”  Perhaps that is the insanity itself.  That somewhere on that staircase I lose my mind forever and then spend the rest of my days sat in that padded cell repeatedly asking anyone and everyone who visits..

“Um, you didn’t happen to notice where I left my mind did you?”

 

 

The Beauty of Bridges

Anyone who knows me well will know that I have a great fondness of Bridges and Water.  I love oceans, seas, rivers, lakes streams and I love bridges – old, new, metal, wooden, rope.

There is something transient, fluid, refreshing, inspiring, cleansing, relaxing, embracing about water and in many ways these are present in bridges also.

They can bring peace, comfort, assurance, confidence, and they can take you from places and/or too places.  They unite countries, nations, peoples, communities and individuals.

Strong, reliable, precarious, weak, extravagant, rudimentary, complex or basic they come in all shapes and sizes and yet some are both incredibly strong and yet incredibly fragile at the same time.

And there could be no greater example of a bridge that is both incredibly strong and incredibly fragile at the same time as the bridge that is trust.

When working well  trust can be the bond that unites people in the strongest way in a  way that can survive any storm and that can last a lifetime.  And yet if not working well it is a bridge that will survive few storms and that will all too easily crumble.

All too  often bridges of trust that have crumbled become drawbridges and instead of being a source of unity, access or invitation they become a method of withdrawal, protection and isolation.

And trust is not always an easy thing to come by.  As someone who suffers from poor mental health I can tell you that this trust is all too often threaten and doubted not necessarily by others but also from within.

So when you feel like you might be being lied to, used, mistreated even neglected it can hit so very hard and hurt desperately – even more so when this is being done or is perceived to be being done by those who should or who claim to love you,

Anyone who knows me well will know that I have a great fondness of Bridges. Anyone who knows me well will know how much I hate being the way I am and the desperate hurt that I feel seeing bridges crumble.

Another Peaceful Day

Had a very peaceful day today and really enjoyed it again.

Sadly I was not well again and the voices were bad but at least I was able to cope with them and not let them affect me too badly.

I managed to do some more reading and catch up on yet more paperwork and also was able to watch some Stephen Fry DVDs from his box set.  I am thoroughly enjoying them and really liking my new routine.  the one’s I am watching at the moment are his “Last Chance To See”  DVDs and they are excellent.  Watched the one about the White Rhino last night and the one about the Manatees. I am so very much enjoying them.

Tomorrow I intend to keep to my new routine as I am enjoying it so much and think it is benefiting me.

Actually the Manatees are large marine mammal that seems to live with such grace and peace and tranquility unless it is impacted by predators.  I so very my long for that grace and peace and tranquility and am so tired of the drama of life and that poor mental health can all too often bring.

Sadly however the number of Manatees are declining to a desperate level and that truly saddens me.  They are I fear so very much misunderstood and under-appreciated for what they truly are.  Hm I can relate to that.  Not the most beautiful of creatures by modern-day standards – hm I can relate to that also, they do have their very own special beauty about them.  But then don’t we all if only we would take a moment not to be governed or influenced by society’s or the media’s influences and commercially motivated standards?

I am going to try to get another early night tonight although I am mindful that it is already very late.  BUt if I am able to get some solid sleep it really should benefit me.

In terms of new routine it is still early days and way too soon to know what affects it will have on me.  One very important motivation, at least in respect of actually getting into a decent sleep pattern is that I am back at hospital on Monday – at least I think I should be but have no way of confirming, so I have booked the transport anyway – and want to be fresh and awake for it.

Time of course will tell and I really do hope that I have not messed up the dates – which of course is entirely possible.  Hopefully, providing the dates are right, it will give me a chance to discuss this Navel bleeding that I am still experiencing albeit only now and then.

Ok time for bed.  I leave you with a picture of grace, peace and tranquility….  I wonder if you can truly see it the same way I do?

Really Enjoyable Day

Spent a very different and yet very enjoyable day today.

I guess really it started last night when I decided to try to have an early night.  My lack of sleep is well-known and I had hoped that by going to bed the minute I started to feel tired I might actually be able to get some sleep.

Of course that didn’t happen the way I planned and simply ended up in rescheduling the normal lack of deep sleep and occasional short periods of dozing.

It did however mean that I was up and out of bed at about 4,30am and rather than spending time online I grabbed a book, made a coffee and went and read for a while.

The rest of the day was filled with catching up on some correspondence that I have been meaning to write – I like to do this by hand rather than on the computer as it is more personal – designing websites, reading and watching some DVDs that I have been meaning to read but hadn’t managed until now.

And I have to say that I really enjoyed the day.  Not spending so much time in my office helped in terms of the fatigue that I usually experience and being away from the internet was so very refreshing.

Actually, apart from keeping up to date with my game on Facebook, and occasionally searching for graphics for the website I was designing, I have to say that being away from the internet was so very refreshing.

I think one of the things that can happen all too easily is that we form and get into patterns and routines that are perhaps not the healthiest for us and that then potentially become a rut.

There is so much that I want to try to achieve.  Writing more, doing more art, reading more, designing new websites, to name but a few.  So I have decided to rewrite my timetable in order to afford me the time and opportunity to do all these things.  Additionally this should ensure that I have as much opportunity to sleep more and if today is anything to go by may also help with my mental health.

I think that reviewing our activities is always a good idea and sometimes we have to make hard decisions in the hope of a better quality of life,  I look forward to seeing how the decisions that I have made affect my quality of life.

CSSH – Covert Subtle Self-Harming

Trigger Warning!

Trigger Warning!

I wonder what picture comes immediately to mind when you hear the words ‘self-harming’?

When starting this blog I made a commitment that if it was ever really going to help anyone (including myself) I was going to need to be honest and open and that I would try to do that in all of my posts and comments.

Because of that I have made no secret of the fact that I am a self-harmer, although I must admit I tend to shy away from publishing any graphic details of how this manifests itself in my life and indeed I am also careful about how often I write about my self harming.

But self-harming, whilst it may inspire images of obvious albeit often hidden, physical surface damage, can actually manifest itself in many different ways.

Folk who struggle with depression and obesity may well comfort eat when they are stressed or depressed and indeed this be a form of self-harming.  Likewise Bulimia and Anorexia are nowadays often associated with self-harming. Similarly those folk who respond to their suicidal thoughts may also be classed as self-harming.

But what about self-harming that is less obvious and less physical?

Yesterday I posted in my post ‘Morning Has Broken’ that I was feeling a great deal better and indeed I was…

Mentally – The confusion/fog had lifted.  Clarity of thought was returning.  Even the voices and thoughts had let up a great deal.

Physically – Whilst still being a little tired, I had managed to get some sleep and did feel a little stronger.

Uncharacteristically  sensibly of me I didn’t rush into doing too much or over-taxing myself and instead paced myself in my efforts to get such things as paper work and housework caught up and yesterday was indeed a very good day.

BUT today things changed for the worse.  For the purpose of this post let me share what my day was like today…

As arranged, my son came and took me into town to go shopping, but I forgot to take my walking stick with me.  I realized half way there but didn’t mention it as I didn’t want to have to make him go back for it.  We were going into town for a little bit of shopping and then across town for more shopping.

In town, I wasn’t able to get half of the things that I needed. As for the other stuff that I needed but was able to get, instead of my being able to buy from the normal shop were I get them I had to try another shop as my normal choice of shop had run out.

The other shop again didn’t have what I needed but had an albeit poor substitute which I had to settle on.  BUT I had to climb a flight of stairs in order to get it and lo and behold half way up the stairs up my knees gave out, I became instantly fatigued and then my breathing followed suit and became very labored.

This meant the cancellation of the rest of the shopping trip and led to my becoming increasingly frustrated, angry and upset and that plus the fatigue and breathing problems have resulted in my having chest pains for most of the rest of the day.

Now I need to clarify at this point that I fully understand that shops run out of things especially this close after the Christmas and New Year period.  But you see I wasn’t angry at the shops I was angry and upset at myself for being so out of condition, so fat, and so sick, and so forgetful (in respect of my walking stick) that I couldn’t even go shopping properly.

Whilst I couldn’t hide my pain, lack of breath or fatigue from my son, I didn’t want to show him how frustrated, upset and angry at myself I was.  I try so hard not to let him see my illnesses or poor mental health as I don;t want others to suffer from my conditions.

Getting home I had a couple of calls that I had to make in respect of transport for my next hospital appointment (scheduled for Monday next week) and so once I had rested a little I tried making those calls only to receive no answer to my calls. So this added to my frustration and upset.

Again I understand that some folk may not be back at work after the Christmas and New Year break but again it wasn’t them or the lack of answer to my calls that frustrated or upset me it was the fact that I have known about this appointment for weeks but had forgotten to make arrangements before now.  So again it was me that was the target of yet more of my frustration and upset and anger.

Determined that I wouldn’t forget other important things I went online to pay some very important bills that needed to be paid either today or tomorrow but when I tried they wouldn’t go through.

I retried, checking, double checking, and triple checking that I had entered all my details correctly – because obviously I can’t even do a simple task like pay bill’s online right – and still they wouldn’t go through.

Logging into my bank account I then realized the problem.  A bill that comes out of my account via direct debit if I haven’t already paid it online via my card, had indeed come out of my account this morning! WHY?  Because I stupidly hadn’t paid it by my card when I was supposed to because my mental health and the subsequent confusion that it causes me got me all in a muddle and I thought I had paid it when I hadn’t!

I share all this not because I need to vent, which I probably do, nor because I am looking for pity which I am not, nor because I am over it all now and feeling much better about myself, which again I am not.  But because it illustrates and emphasizes  the point I am trying to make about what I have termed (for want of a better label) as ‘CSSH’ – ‘Covert Subtle Self-Harming’.

Did you notice, when reading my account of my day today, just how much I attacked, ridiculed and harshly judged myself in that account?  Trust me none of what I have shared about my day has been exaggerated nor have I added any embellishments for effect.  It really is how I treat myself mentally when I have done stupid things or when my mental health is better and I start to realize things that have gone wrong or that I have screwed up during the episode of poor mental or physical health.

Is this sound familiar to anyone?  Why do I do this?  I know full well that I have mental and physical health issues and I know full well how this can affect me and that I often mess up or forget things or get confused during episodes of very poor mental or even physical health.

Additionally, I am fully aware that this self-critical attitude of harshly judging, ridiculing and mentally self-attacking reaction and behavior only serves to get me even more worked up and is thus detrimental to both my physical and mental health and thus qualifies as a form of self-harming.

But see that is the point isn’t it?  I am self-harming because I am punishing myself or at very least turning my frustration with my health and illnesses against myself.  It may not be as obvious as physically harming myself but it is still self-harming and I am pretty sure I am not the only one who does it.

And here is the stupidity of it all.  Not one single second, nor one entire episode of doing this is going to change the fact that I do have poor mental and physical health, do get fatigued, do get confused and so sometimes forget things or get muddled or mess things up.  In fact it has the opposite effect as it get me even more aggravated mentally and this in turn aggravates my heart condition.

Not one single second, nor one entire episode of doing this is going to help the fact that I have to deal with not being able to pay these bills tomorrow.  In fact it has the opposite effect because I need to be able to focus and deal with them rationally and calmly but am already worked up and extremely anxious over it all and know it is going to affect my ability to sleep tonight.

As I said above, ‘CSSH’ or ‘Covert Subtle Self-Harming’ may not be as obvious as physically harming and I need to learn to stop doing it.  BUT again, I am pretty sure I am not the only one who does it and needs to stop it. Am I?

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